My name is Chad Smith, also known as “Chad the Dad”. My wife, Becky, and I are the proud parents of two wonderful children, Aleah who is eight years old, and Blake, who is five years old. Blake has a long list of medical challenges which continue to plague his life. Throughout the past five years our family has grown and learned many different tricks in dealing with the trials that come with being Parents of a Medically Challenged Kid.
You can read our advice on being Parents of Medically Challenged Kids here.
Becky and I feel we have gained a wealth of knowledge throughout the years. We believe we have nearly everything Blake needs in his life to live a healthy, normal life and even thrive while battling the problems associated with his unknown neuromuscular condition. We want to share what we know with you and others like us. We want to help answer the scary questions such as: Will our life ever be normal? Can we do the same things we were doing before? We want to share our life experiences, to let people know what it is like after living these past five years with ongoing medical challenges.
We want to help other people to reach the “New Normal” in their life. We have adapted and learned to ask and advocate for nothing but the best for our family. We want to help you advocate and get the very best for you and your family.
We are currently raising awareness and money for MDA and Make-A-Wish.
Our family along with many other in our position have learned a lot of valuable information on caring for our children. I do not want to fall off the face of the earth, I want to share with everyone what we know and how we reached the new normal in our life even with a Undiagnosed child.
I have not figured out how to involve other yet. But I have recently joined forces with Falynn’s Wings https://www.falynnswings.org/ Falynn’s Wings provides medical equipment for children with Spinal Muscular Atrophy (SMA) and educates families on the importance of daily treatments to extend the life of an SMA child. They encourage and inspire parents not to give up hope, to love and cherish each moment with their children. Falynn’s Wings is a non-profit 501(c)(3) public charity. Although our son does not have SMA they are the most similar medical group to our child’s condition.
For starters want to start meeting with family’s discharging from the hospital and teaching them what we have learned about organizing our child’s room. With funding from Falynn’s Wings we can travel to them, purchase shelving, storage containers and help them set up their room to start them on their new journey. We can be there for advice on advocating for your child teach them the tricks we have learned in dealing with our insurance.
It’s just the beginning but I believe we can do big things.