The team at Global Genes is happy to present a new White Paper that was developed to expand the dialogue on this important topic, that first took place at the 3rd Annual RARE Patient Advocacy Summit in late 2014.
The goal was to take the discussion at this sold-out event, and provide the insights and outcomes in a white paper format, and make available to the community.
“This is an incredibly important and timely topic,” stated Nicole Boice Founder & CEO of Global Genes, “And this is just another way that we work to bring this important content to the rare disease community, because not everyone can attend in-person.”
In addition to the white paper, the RARE Patient Advocacy Summit is always available to watch via LiveStream for those unable to join the Southern California conference.
Global Genes is grateful to its sponsors and industry partners who participate and support these types of important efforts. We encourage you to share this white paper with your colleagues, advocacy groups, media contacts, etc.