My diagnosing doctor at the Mayo Clinic told me that 3 % of the population had gastritis, but only 3% of those people have Auto Immune Atrophic Gastric. He told me I am “a very special case.”
I have learned that I don’t LIKE being the special case because doctors don’t know how to treat us except for diflucan for yeast infections, and B12 injections if the disease has led to Pernicious Anemia which mine has.
I started a Facebook page PRAYING I would find others just like me. For over a year, we had less that 10 people, but in the last 6 months we have grown to 45!
We all believe more doctors are learning what to test for to get the correct diagnosis for their patients. I am one of the “lucky” ones that can not tolerate the B12 injections and had an allergic reaction to them, which my Mayo Doctor then said I am one in like 100 million!
March is the Month to Share YOUR Story!
Do you or your child have a rare disease? We want to hear your story. This month we celebrate all patients and their families who speak out on behalf of their condition to raise awareness, connect with others and inspire the community. Make sure to share your story with us by writing to us here.