Rare Disease Legislative Advocates in coordination with Rare Disease Congressional Caucus Co-Chairs:
Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY), will host a briefing on:
Precision Medicine: New Frontiers for Rare Diseases

Thursday, November 5th, 2015

12:00 pm – 1:00 pm (lunch provided)
Rayburn House Office Building
Room: B318 
Moderator: John Crowley, Parent Advocate & CEO, Amicus Therapeutics
  • Matt Might, President, NGLY1.org & Associate Professor, University of Utah
  • Erynn Gordon, Director of Clinical Development, 23andMe
  • John Stone, Counsel, Committee on Energy and Commerce, U.S. House of Representatives
  • Dr. Christopher Austin, Director, National Center for Advancing Translational Sciences, NIH
  • Sean Sigmon, Business Development Director, Oracle Health Sciences

Hosted by:

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