A “truly remarkable” ten-year-old from Chalfont St.Peter, who became an award-winning campaigner last night, said he is fighting on behalf of 2,500 children and adults in the UK who also suffer from his rare condition.
Archie Hill, who has Duchenne muscular dystrophy, was rewarded for his “tireless” campaigning with the title of Most Inspirational campaigner on youth issues’ at the Kids Count Inspiration Awards Ceremony at the House of Commons last night.
Archie was nominated for the award by Cheryl Gillan, MP for Chesham and Amersham, for his campaigning work to access Translarna – a life-altering drug which could allow him to walk for longer.
Muscular Dystrophy UK say around 2,500 children and adults in the UK have Duchenne muscular dystrophy, almost of which are male.
Archie said: “I’m really happy to receive this award. I don’t just do this for me, I do it to help all the boys with Duchenne.
“I just want to keep playing with my friends in the playground at school.”
Robert Meadowcroft, Chief Executive of Muscular Dystrophy UK, said: “We are proud that Archie has been recognised with this award.