Join the Rare Disease Legislative Advocates on Wednesday, February 17th: 1:00 pm to 2:00 pm EST for a special webinar/conference call.

This call’s agenda includes

  • FAST Act – Stroke Treatment by Telemedicine: Adam Harbison, Legislative Director, Representative Morgan Griffith (R-VA)
  • Rare Disease Week on Capitol Hill: Stephanie Fischer, Senior Director of Patient Engagement and Communications, EveryLife Foundation
  • Capitol Hill Update: Max Bronstein, Senior Director of Advocacy and Science Policy, EveryLife Foundation

Have something you’d like to include? You can contact RDLA at the following email:


Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.