Join the Rare and Undiagnosed Network (RUN) in their annual event for World Rare Disease Day. Below are some activities the organization is presenting in the Utah area.
2nd Annual Utah Rare Disease Day Symposium
1:00 PM – 5:00 PM at the Salt Lake City Marriott on the University Utah campus
A TED-style event to inspire, motivate, and spark collaboration among the rare disease stakeholders — patients, healthcare providers, researchers, companies, institutions, legislators — in our state. Registration required. 300 person capacity. Event will be live streamed and recorded for distribution.
For Children: In partnership with RUN and Utah Rare the University of Utah will host a free Education Room at the Marriott. Fun, educational activities for all ages – including a chance to touch real human brains – will teach about health, medicine, and research. Sponsored by the University of Utah Neuroscience Initiative at the University of Utah.
NBA Utah Jazz game against the Brooklyn Nets
7:00 PM – Vivint Smart Phone Arena
Thirty children with rare conditions will be on the court for the National Anthem, while 120 tickets have been donated by the Utah Jazz Player Programs for their families and others in the rare community. (Tickets by invitation only for the families of the 30 children standing on the court and for volunteers of Utah Rare)