Genetic Alliance helps to coordinate PCORnet – the national clinical research network. As PCORnet grows, we are keenly aware that instead of asking the public to trust us, we must ask how it is that we are or are not trustworthy.
We invite you to participate in a dynamic meeting on March 28-29, 2016 in Washington DC called “Building Trustworthiness in PCORnet” to begin this effort—not just for PCORnet itself but a critical dialogue about ethics, trust, and engagement in research overall. The sessions are designed to encourage meaningful discussion through provocative (short) presentations from individuals representing a variety of fields and all attendees will have a major participatory role. A draft agenda is posted here for your reference.
We need your voice at this meeting. Register this week, space is limited. There is no registration fee, the meeting is free.