RDLA’s March Legislative Webinar/Conference Call is scheduled for Wednesday, March 23rd: 1:00 pm to 2:00 pm EST 

Click ‘register’ below to RSVP and receive the call in number and webinar info:

REGISTER

These meetings help facilitate open dialogue about legislation that affects the rare disease community. They are open to the public and the media. We ask that media formally announce their participation and refrain from quoting any of the discussion during the meeting. We encourage media to follow up with participants after the meeting for direct quotes.

Agenda:

  1. Capitol Hill Update: Max Bronstein, Senior Director of Advocacy and Science Policy, EveryLife Foundation

 

Agenda is OPEN, please submit possible agenda items to vganapathy@everylifefoundation.org 

Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.

– See more at: http://salsa4.salsalabs.com/o/51556/p/salsa/event/common/public/?event_KEY=5644#sthash.PBIccFAJ.dpuf

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