Wednesday, April 20th: 1:00 pm to 2:00 pm EST 

Click ‘register’ below to RSVP and receive the call in number and webinar info:

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Agenda:

  1. Advancing Standards in Regenerative Medicine Act: Samantha Warren, Senior Policy Advisor to Representative Bill Foster (IL-11)
  2. AB 2752 (California) Continuity of Care: Jerry Jaffe, Public Policy Director, California Chronic Care Coalition
  3. Newborn Screening & Capitol Hill Update: Max Bronstein, Senior Director of Advocacy and Science Policy, EveryLife Foundation

 

Agenda is OPEN, please submit possible agenda items to vganapathy@everylifefoundation.org

Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.

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