When Jun 07, 2016
from 09:00 AM to 05:00 PM
Where NC General Assembly Legislative Complex, 1100 Courtyard, 16 West Jones Street, Raleigh, NC 27601
Contact Name
Attendees We welcome NC Pharma, Biotech & CRO’s, researchers and clinicians specializing in rare diseases, patients and patient advocacy groups.

 

This will be an event to thank our legislators for the NC Rare Disease legislation as well as an educational event for those who are affected by rare disease and those who work with rare disease.

Who can attend? We welcome NC Pharma, Biotech & CRO’s, researchers and clinicians specializing in rare diseases, patients and patient advocacy groups. The General Public is welcome to learn more about rare disease and the efforts going on in the state of North Carolina as a result of this legislation.

Registration: While this event is free, we ask that you please register using this link

Registration should be completed by May 25, 2016 in order to plan accordingly for this event.

If you have any questions, please contact Tara Britt, Associate Chair, NC Rare Disease Institute at .

There will be tables provided so if you plan to attend to represent a rare disease whether as an advocate or an educator, please bring materials that can be distributed that day.

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