Date: June 4, 2016
Location: 5K Loop Around Howard County Fairgrounds West Friendship, MD
Learn more about how to register here.
Peroxisomal Biogenesis Disorder (PBD) is a virtually unknown spectrum disorder that affects 1 in 50,000 children, and is extremely devastating to a family. Many children affected with the disorder, like Ilan, do not live past the first years of life. Nearly all affected children that do live past the first years are both hearing and visually impaired, and require special medical attention throughout the course of their life for feeding, mobility, and communication. The Global Foundation for Peroxisomal Disorders (http://www.thegfpd.org) is a 501(c)(3) public charity committed to funding research to develop a greater understanding of PBD, and to provide support to families affected by PBD. All proceeds from the Ilan-a-thon will benefit The Global Foundation for Peroxisomal Disorders.
Over the last several years, the Ilan-a-thon has had nearly 700 attendees and has raised more than $40,000 for the GFPD. These funds were used to support the first official GFPD research grant cycle, which funded PBD research at several research institutions, including the Kennedy Krieger Institute in Baltimore. This year, GFPD funds from the Ilan-a-thon and other fundraisers will be used to support drug screening efforts for PBD at the National Institute of Health in Bethesda, Maryland.
$25 PRE-REGISTRATION rate (before January 1, 2016) per person
$30 per person from January 1 until June 1, 2016
$12 per child (12 and under) for t-shirt until June 1, 2016
Family and Business Sponsorship Opportunities Available
Planning Committee: Co-chairs: Mousumi Bose, Andrew Betzer, Mahua Bose, and Lynda Meier Committee Members: Suhel Srivastava, Christie Moore, Joseph Fitzpatrick, Julie Robertson, Patrice Craig, Jessica Dowches-Wheeler, Debamitra Ray Koshy, Kasandra Cresswell, Blake Wheeler. Jason Wheeler
Contact: Mousumi Bose 410.274.3858 email@example.com