Organization: ECD Global Alliance

September 12-17, 2016 will mark the Erdheim-Chester Disease Global Alliance’s 2nd Annual ECD Awareness Week. Help the ECDGA spread the word about Erdheim-Chester Disease by engaging in social media, setting up events, posting flyers and providing fact cards in your community, or visiting area hospitals.

Use hashtag #ECDAwareness Week

For more information, ready-made resources, and suggestions for how you can get involved please visit the following link: http://erdheim-chester.org/news/2016-ecd-awareness-week/

Thank you for your support!

Join the Community

Please join the ECD Global Alliance and the ECD community of patients, caregivers, and ECD medical professionals for this year’s first event held abroad. To achieve the ultimate knowledge sharing environment for attendees, the ECDGA will create an agenda that reflects the needs of patients in each category of living with their disease. The event agenda is to include discussions presented by medical professionals across specialties knowledgeable about ECD. ECD patient and caregiver community social opportunities are also available providing real-time social sharing which has proven to be meaningful to this group.

For more information and to register go to http://erdheim-chester.org/news/2016-ecd-patient-family-gathering/ .

1 thought on “2nd Annual Erdheim-Chester Disease Awareness Week”

  1. Ed Gregg says:

    Have been diagnosed with and looking for information and accounts of Erdheim Chester Disease. Have been reading what is available and would like to hear life accounts, please.

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