Wednesday, September 14th: 3:00 pm to 4:00 pm EST 

1101 14th St. NW Suite 700 Washington, DC 20005-5601


  1. H.R. 3742 – The Access to Marketplace Insurance Act:Kyle Rosner, Government Relations Associate, Patient Services, Inc.
  2. SB 1095 (California) Newborn Screening: Vignesh Ganapathy, Manager of Advocacy and Government Relations, EveryLife Foundation
  3. Capitol Hill Update: Max Bronstein, Senior Director of Advocacy and Science Policy, EveryLife Foundation

Interested in attending? Click here to register.

Agenda is OPEN, please submit possible agenda items to

Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.