Friday, October 7, 2016 @ 1pm (EST)
Transitioning from the pediatric to the adult health care system should be expected for all adolescents living with a neurologic condition. While it will vary amongst adolescents as to how that transition will look, when the transition will happen, or who the transition will involve, the central goal of starting the transition planning discussions early (before age 14 years) is to ensure the youth attains his/her level of optimal independence should guide all transition planning processes.
Join experts from the child neurology community for a 75-minute webinar, Child Neurology Community Conversations from the Voices of the Provider, the Caregiver, and the Advocate: Transition into Adulthood, that will outline the 8 common principles for the neurologist’s role in transitioning youth to the adult healthcare system and how youth, caregivers, and advocates act as equal partners in care to ensure a successful medical transition (as published in Neurology® ).
In this webinar you will learn:
- Why transition and transition planning are important for youth/ families
- The 8 common principles that define the neurologist’s role in transition
- What child neurologists want youth and caregivers to know about transitions
- Examples of successful transitions to emulate
- Readiness tools used by providers and how these tools benefit youth, caregivers, and the child neurology team
- How youth and caregivers can use the 8 common principles to set expectations, and other helpful resources
- What youth and caregivers want providers to know as they approach transition planning.
Lawrence W. Brown, MD
Lawrence W. Brown, MD is Associate Professor of Neurology and Pediatrics at the Children’s Hospital of Philadelphia (CHOP) and the Perelman School of Medicine of the University of Pennsylvania. Dr. Brown is the past president of the Child Neurology Foundation; he currently serves as chairman of its medical transition initiative which is defining the goals of successful transition for youth with neurologic disorders. He is senior author on its first publication entitled “The neurologist’s role in supporting transition to adult health care: a consensus statement” was just published in the journal Neurology in August 2016 with endorsements by the American Academy of Neurology, American Academy of Pediatrics and the Child Neurology Society in addition to the Child Neurology Society. Locally he is a co-investigator of an epilepsy education and transition project funded by the Health Resources Services Administration (HRSA) in collaboration with the American Academy of Pediatrics.
Dr. Brown is a senior clinician in CHOP’s Pediatric Regional Epilepsy Program where he continues to be principal investigator on numerous clinical drug trials in pediatric epilepsy. He is also director of the Pediatric Neuropsychiatry Program, a multidisciplinary clinic for children with Tourette syndrome, high functioning autism, complex ADHD and genetic disorders where complex learning and behavioral issues have a neurobiological basis. He is a principal investigator of a genetic study funded by the National Institutes of Health as part of an international consortium to develop a world-wide data bank of individuals with Tourette syndrome. In addition, he is also a senior clinician in the Sleep Disorders Center with a major interest in how sleep and its disorders interact in children with neurological and developmental disorders.
He is an active member of the Child Neurology Society, the American Epilepsy Society, the Academy of Pediatrics (where he served two terms as Chairman of the Section of Neurology) and the American Academy of Neurology (where he served sequentially as fellow, advisor and faculty at the annual Palatucci Advocacy Leadership Forum). In addition to peer reviewed research, Dr. Brown’s publications include associate editorship of Schwartz’s Clinical Handbook of Pediatrics, Fifth Edition, as well as all previous editions. He is a member of the editorial boards of Pediatric Neurology and Clinical Neurology. Locally, he served for many years as chairman of the Professional Advisory Board and the executive board of the Epilepsy Foundation of Eastern Pennsylvania. Dr. Brown currently serves on the advisory committee for the Coordinating Center for Children and Youth with Epilepsy for the American Academy of Pediatrics with funding by HRSA and the Maternal Child Health Bureau as well as the data safety committee for the National Institute of Health’s Best Pharmaceutical for Children Act. He also recently served on the American Academy of Pediatric Subcommittee on ADHD which revised guidelines for diagnosis and treatment of ADHD.
Rebecca J. Schultz, PhD, RN, CPNP
Dr. Schultz received her PhD in Nursing Science from Texas Woman’s University in Houston, Texas and her Master of Science in Nursing from the University of Texas, Graduate School of Biomedical Sciences in Galveston, Texas. She is a nurse scientist and pediatric nurse practitioner with over 25 years’ experience caring for youth with neurological conditions and their families. She is the principal nurse practitioner for the Comprehensive Epilepsy Program and the Blue Bird Circle Rett Center at Texas Children’s Hospital. She is also Assistant Professor of Pediatrics and Neurology at Baylor College of Medicine, Houston, Texas. Dr. Schultz’s research interests include the psycho-social aspects of epilepsy in youth, efficacy and side effects of the ketogenic diet, and transition of adolescents with epilepsy from pediatric to adult care. She lectures at the local, state, and national level about the treatment and care of youth with epilepsy and transitioning adolescents with epilepsy to adult care. She is an active member of the National Epilepsy Foundation, Professional Advisory Board, the Epilepsy Foundation of Texas-Houston affiliate, the American Epilepsy Society, the Association of Child Neurology Nurses, the National Association of Pediatric Nurse Practitioners, and the Child Neurology Foundation Transition Project Advisory Committee.
Christina SanInocencio is the founder and executive director of the LGS Foundation, the leading organization in the world dedicated exclusively to Lennox-Gastaut Syndrome, a rare and severe form of childhood-onset epilepsy. The mission of the LGS Foundation is to improve the lives of individuals with Lennox-Gastaut Syndrome through research, programs, and education. Ms. SanInocencio was inspired to start the LGS Foundation by her brother Michael who has been living with Lennox-Gastaut Syndrome for 25 years. Christina also serves as a board member of the Epilepsy Leadership Council, a member of the Transitioning Project Advisory Committee, and a steering committee member of the Rare Epilepsy Network. She has served as a peer reviewer for the Department of Defense’s Epilepsy program and a committee member for the American Epilepsy Society’s Communication Council. Christina holds a Master’s Degree in Communication, an advanced graduate certificate in Health Communication and Public Health, and a Bachelor of Fine Arts is Electronic Media. She is currently pursuing her PhD at the University of Maryland where her research focus is on health and science communication. Other research interests of hers include the media’s role in health-related public policy, public health awareness campaigns, rhetoric of health issues, and medical transitioning.