Our greatest hope for you this year is that you’re home, out of the hospital, enjoying each day with family and friends. We know that isn’t the reality for many families this year and our hearts and prayers go out to you.
During this joyous time of year we are grateful for all of those in the rare disease community—from the patients who share their stories, to the organizations that provide support and information, to the pharmaceutical companies and hospitals that provide treatment.
We wish you abundance, happiness and peace in a new year filled with hope.
As always, we appreciate any donations to our organization if you are looking for a great last minute gift.