New beginnings, fresh starts and reaffirmations of hope for all rare disease patients greets us this new year. In 2016 we passed the 21st Century Cures Act, saw new treatments for Duchenne, and watched countless pharmaceutical companies turn their focus to orphan diseases.
Whether your resolutions this year are to help yourself or your child be the best advocate you can be, or to turn your support group into a patient-powered organization, we’ll be around to guide you with the resources you need to make a difference.
Best Wishes,
The Staff at Global Genes