Last month, Children’s National Health System, the world’s largest provider of care for children with rare genetic disorders, announced the formation of Children’s National Rare Disease Institute. Billed as a first-of-its-kind center focused exclusively on advancing the care and treatment of children and adults with rare genetic diseases. The National Organization for Rare Disorders has designated it as its first Center of Excellence of Clinical Care for Rare Diseases. We spoke to Marshall Summar, Chief of Genetics and Metabolism at Children’s National and Chairman of NORD, about the new institute, the ambitious vision for it, and the role it hopes to play in transforming care for people with rare diseases.

1 thought on “RARECast: Children’s National Launches First-of-its-Kind Rare Disease Center”

  1. Diana Casey says:

    Hi! My name is Diana Casey and I have 2 daughter’s who have a rare disease called Neimann Pick Type C. Does this Global Genes Hospital in Washington DC try to find cures for this kind of disease?

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