Global Genes CEO & Founder, Nicole Boice, was recently invited to be a guest on the Two Disabled Dudes’ Podcast.
Podcast hosts, Sean and Kyle, are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” – Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Their podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad.
Boice was there to discuss how she became involved in the rare disease community, what Global Genes is offering in terms of resources for this community, and how patients, parents, friends and family can get involved in the upcoming World Rare Disease Day.