Chronic Inflammatory Demyelinating Polyneuropathy

by Melissa Jenkins melissa.jenkins@tc.tc  (source)

 

When Chris Humby of was misdiagnosed with Multiple Sclerosis (MS) 25 years ago, he thought he was being handed a death sentence. 

As a young father of one child and another one on the way, it was a scary situation for both him and his wife Debbie.

He was told he would be in a wheelchair within the next 10-12 years, and his quality of life was going to drastically change.

“I thought I had MS and it was just slow progressing,” said Humby.
 
It was almost two decades later when a neurologist noticed the signs for MS were not there, although the symptoms were. Additional testing showed he had Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), a rare neurological disorder that is progressive, leading to weakness and a decrease in sensory function.

This past October, Humby began a treatment that is supposed to help stop, and maybe even reverse, the effects of the disease. For two days he gets intravenous immunoglobulin (IVIg) therapy. It contains plasma from human blood and helps boost a person’s immune system.

Humby has had three treatments, and will continue to have them for the rest of his life. The schedule and amount of treatments are still being figured out for him, but the frequency and strength of the IVIg can change.

 
“I’m hoping this treatment will keep me at best status quo,” he said. “I’m content with status quo.”
 
 

Diagnosis doesn’t control life

For the first two years after Humby was diagnosed with MS, he stopped doing things that he loved. He didn’t see the point if he wouldn’t be able to do the same things in a few years.

But that didn’t last.
 
 “One day I just said, ‘I can’t live with what if, so I have to start living now,’” Humby said.
 
 He is well-known in his community.
 
 He is deputy fire chief, a sea cadet officer, runs a photography business, is part of the local cat rescue group and is a paramedic. It’s not uncommon to see him attend different events and activities, offering his services and support when he can.

What is CIDP?

 
 
CIDP happens in less than two out of every 100,000 people. The symptoms mimic MS and are in the same line of diseases as Guillain Barre.
 
The National Institute of Neurological Disorders and Stroke explains the treatment as, “a neurological disorder characterized by progressive weakness and impaired sensory function in the legs and arms. The disorder, which is sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves.”
 
 
 
 
 

71 thoughts on “Misdiagnosed for Two Decades, CIDP Patient Vows Not to Quit”

  1. That is very fascinating, You’re an overly professional blogger.
    I’ve joined your feed and look forward to in the hunt for more
    of your magnificent post. Also, I have shared your site
    in my social networks

  2. Awesome! Its in fact amazing piece of writing, I have got much
    clear idea regarding from this article.

  3. This post is invaluable. Where can I find out more?

  4. g says:

    I like it when individuals get together and share opinions.

    Great blog, continue the good work!

  5. I visit everyday some web pages and information sites
    to read articles or reviews, however this blog gives quality
    based articles.

  6. Great article, just what I wanted to find.

  7. Ridiculous quest there. What happened after? Thanks!

  8. I’m extremely pleased to find this site. I
    want to to thank you for ones time for this particularly fantastic read!!
    I definitely savored every bit of it and I have you book marked
    to see new stuff on your blog.

  9. tinyurl.com says:

    Thanks for ones marvelous posting! I actually enjoyed reading it, you might
    be a great author. I will remember to bookmark your blog and may come back very soon.
    I want to encourage you to ultimately continue your great
    writing, have a nice afternoon!

  10. Nice blog right here! Also your site lots up very fast!
    What host are you the use of? Can I am getting
    your associate hyperlink in your host? I want my website loaded up as
    fast as yours lol

  11. After looking over a handful of the blog posts on your web site,
    I seriously appreciate your way of blogging. I bookmarked it to my bookmark
    webpage list and will be checking back in the near future.
    Take a look at my web site too and tell me your opinion.

  12. Hi, I do believe this is an excellent web site. I stumbledupon it 😉 I may come back
    yet again since I saved as a favorite it.
    Money and freedom is the best way to change,
    may you be rich and continue to help other people.

  13. Hello there! I know this is kinda off topic but I was wondering if you knew
    where I could get a captcha plugin for my comment form?
    I’m using the same blog platform as yours and I’m having
    difficulty finding one? Thanks a lot!

  14. quest bars says:

    In fact when someone doesn’t be aware of then its up
    to other viewers that they will assist, so here it takes place.

  15. tinyurl.com says:

    Pretty! This was a really wonderful article. Many thanks for supplying this info.

  16. Hello my friend! I wish to say that this article is
    awesome, great written and come with almost all vital infos.
    I would like to look extra posts like this .

  17. Hello there! This post couldn’t be written much better!
    Going through this post reminds me of my previous roommate!

    He continually kept talking about this. I most certainly will send
    this information to him. Fairly certain he’ll have a great read.

    I appreciate you for sharing!

  18. Thank you, I have just been searching for information approximately this topic
    for ages and yours is the greatest I’ve discovered so far.
    But, what concerning the conclusion? Are
    you sure about the supply?

  19. If you want to take a good deal from this post then you have to apply these methods to your won website.

  20. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now
    each time a comment is added I get three emails with the same comment.
    Is there any way you can remove me from that service? Thank you!

  21. Hello just wanted to give you a brief heads up and let you know
    a few of the images aren’t loading correctly. I’m not sure why but I
    think its a linking issue. I’ve tried it in two different web browsers and both show the same
    outcome.

  22. Heya this is kinda of off topic but I was wanting to
    know if blogs use WYSIWYG editors or if you have to manually code with HTML.
    I’m starting a blog soon but have no coding skills so
    I wanted to get guidance from someone with experience. Any help would be enormously
    appreciated!

  23. Very soon this website will be famous among all blog
    visitors, due to it’s nice articles

  24. I couldn’t refrain from commenting. Well written!

  25. Hi, i think that i saw you visited my website so i got here to return the prefer?.I’m attempting
    to in finding issues to enhance my site!I assume its adequate to
    use some of your ideas!!

  26. I am regular visitor, how are you everybody? This post posted at this web page is genuinely pleasant.

  27. I’m no longer positive the place you are getting your information,
    however good topic. I must spend some time studying much more or understanding more.
    Thank you for fantastic information I was searching for this information for my mission.

  28. Heya! I realize this is kind of off-topic however I had to ask.
    Does managing a well-established website such as yours take
    a lot of work? I am completely new to running a blog however I do write in my journal every day.
    I’d like to start a blog so I can easily share my personal experience and
    thoughts online. Please let me know if you have any
    recommendations or tips for new aspiring blog owners.
    Thankyou!

  29. Hmm is anyone else having problems with the pictures on this blog loading?
    I’m trying to determine if its a problem on my end or if it’s the blog.
    Any feedback would be greatly appreciated.

  30. Very good blog post. I absolutely appreciate this site.

    Keep it up!

  31. natalielise says:

    This article gives clear idea in favor of the new viewers of blogging,
    that really how to do running a blog. natalielise plenty of fish

  32. Does your website have a contact page? I’m having problems locating it but, I’d
    like to shoot you an e-mail. I’ve got some recommendations for your blog you
    might be interested in hearing. Either way, great site
    and I look forward to seeing it improve over time.

  33. What’s up, yeah this piece of writing is in fact pleasant
    and I have learned lot of things from it concerning blogging.

    thanks.

  34. My brother suggested I might like this website.

    He was totally right. This post actually made my day.
    You can not imagine just how much time I had spent for this
    information! Thanks!

  35. smore.com says:

    Woah! I’m really digging the template/theme of this blog. It’s simple, yet effective.
    A lot of times it’s challenging to get that “perfect balance” between usability and appearance.
    I must say you’ve done a fantastic job with this. Additionally, the
    blog loads extremely fast for me on Firefox. Excellent Blog!

    natalielise plenty of fish

  36. dating site says:

    Hey there just wanted to give you a quick heads up. The words in your article seem to be running off
    the screen in Ie. I’m not sure if this is a format issue
    or something to do with internet browser compatibility but I figured I’d post to let
    you know. The design and style look great though!
    Hope you get the problem fixed soon. Many thanks

  37. pof says:

    It is perfect time to make a few plans for the future and it’s time to be happy.
    I’ve read this publish and if I may just I wish
    to suggest you few attention-grabbing issues or suggestions.
    Perhaps you could write subsequent articles referring to this article.
    I desire to read more things about it!

  38. I have read a few just right stuff here. Certainly worth bookmarking for revisiting.

    I wonder how much effort you place to make one of these excellent informative web site.

  39. dating site says:

    Hi, I do believe this is a great blog. I stumbledupon it ;
    ) I may come back once again since i have book-marked it.
    Money and freedom is the best way to change, may you be rich and continue to guide others.

  40. Do you have a spam problem on this website; I also am a blogger, and I was wanting to know your situation; many
    of us have developed some nice procedures
    and we are looking to swap strategies with others, be sure to shoot me an email if interested.
    natalielise plenty of fish

  41. I know this if off topic but I’m looking intfo starting my own blog and was curious what all is requjired to get set up?
    I’m assuming having a blog like yours would cost a pretty penny?
    I’m not very web smart so I’m not 100% sure.
    Any recommendations or advice would be greatly appreciated.
    Appreciate it

  42. dating sites says:

    I’ve learn several just right stuff here. Definitely price bookmarking for revisiting.
    I surprise how a lot effort you place to create any such
    excellent informative website.

  43. It’s wonderful that you are getting ideas from this post as
    well as from our discussion made at this time.

    pof natalielise

  44. Free Sex Cam says:

    Would you like to see and talk to sexy girls for free? If so, then visit http://taraa.xyz/fl5

  45. I’m typically to blogging and i really respect your content. The article has really peaks my interest. I am going to bookmark your website and maintain checking for brand spanking new information.

  46. Write more, thats all I have to say. Literally, it seems as though
    you relied on the video to make your point. You definitely know what youre talking about, why waste your intelligence
    on just posting videos to your site when you could be giving us something enlightening to
    read?

  47. Does your website have a contact page? I’m having
    a tough time locating it but, I’d like to shoot you an email.

    I’ve got some recommendations for your blog you might be interested in hearing.
    Either way, great website and I look forward to seeing it develop over time.

  48. Hello There. I found your blog using msn. This is an extremely well written article.

    I’ll make sure to bookmark it and come back to read more of
    your useful information. Thanks for the post. I will
    certainly return.

  49. Hi there everyone, it’s my first pay a visit at
    this website, and piece of writing is genuinely fruitful for me, keep up posting such posts.

  50. Hi there, every time i used to check webpage posts here in the early
    hours in the morning, for the reason that i love to learn more and
    more.

  51. Hello friends, how is everything, and what you desire to say regarding this article, in my view its really amazing in favor of me.

  52. This design is spectacular! You obviously know how to keep a reader amused.
    Between your wit and your videos, I was almost moved to start my own blog (well, almost…HaHa!) Wonderful job.
    I really loved what you had to say, and more than that, how you presented it.
    Too cool!

  53. Hello there I am so thrilled I found your weblog, I really found you by accident,
    while I was looking on Yahoo for something else, Anyhow I am
    here now and would just like to say thanks a lot for a incredible post and a all round interesting blog (I also love the theme/design),
    I don’t have time to look over it all at the minute but
    I have saved it and also added in your RSS feeds, so when I have time I will be back to read
    much more, Please do keep up the great job.

  54. Does your website have a contact page? I’m having
    problems locating it but, I’d like to send you an e-mail.

    I’ve got some recommendations for your blog you might be interested in hearing.
    Either way, great blog and I look forward to seeing
    it improve over time.

  55. Hello There. I found your weblog the use of msn. This
    is a very smartly written article. I’ll make sure to bookmark it and come back
    to learn more of your helpful information. Thank you for the post.
    I’ll certainly return.

  56. This excellent website truly has all of the info I wanted concerning this subject and didn’t
    know who to ask.

  57. Awesome! Its really awesome post, I have got much clear idea concerning from this paragraph.

  58. Wow that was unusual. I just wrote an extremely long comment but after I clicked submit my comment didn’t appear.
    Grrrr… well I’m not writing all that over again. Anyway,
    just wanted to say great blog!

  59. Hi, I’ve been visiting your website a few times and decided to give you some positive feedback because I find it very useful. Well done. I was wondering if you as someone with experience of creating a useful website could help me out with my new site by giving some feedback about what I could improve? You can find my site by searching for “redaktionstest net casino” in Google. I would appreciate if you could check it out quickly and tell me what you think. -> info@redaktionstest.net – Thank you for help and I wish you a great week!

  60. This is a topic which is near to my heart… Thank you!

    Where are your contact details though?

  61. Great delivery. Sound arguments. Keep up the amazing spirit.

  62. Hello there, I discovered your web site by way of Google
    while searching for a comparable topic, your web site got here up, it looks good.
    I’ve bookmarked it in my google bookmarks.

    Hi there, simply turned into aware of your blog via Google, and
    located that it is really informative. I’m going to watch out for brussels.
    I’ll appreciate for those who proceed this in future. A lot
    of people can be benefited from your writing. Cheers!

  63. Pretty great post. I just stumbled upon your blog and wanted to mention that I have truly enjoyed surfing around your blog posts.
    In any case I will be subscribing for your feed and I am hoping you write again soon!

  64. Superb blog! Do you have any suggestions for aspiring writers?
    I’m planning to start my own site soon but I’m a little lost on everything.
    Would you recommend starting with a free platform
    like WordPress or go for a paid option? There are so many options out there that I’m totally confused ..
    Any suggestions? Kudos!

  65. Today, I went to the beach front with my kids. I found a sea shell and gave it to my 4 year old daughter and said “You can hear the ocean if you put this to your ear.” She placed the shell to her ear and screamed. There was a hermit crab inside and it pinched her ear. She never wants to go back! LoL I know this is totally off topic but I had to tell someone!

  66. Linnea Hauck says:

    Nice post. I be taught something tougher on completely different blogs everyday. It would at all times be stimulating to learn content material from different writers and practice somewhat one thing from their store. I’d prefer to use some with the content on my weblog whether or not you don’t mind. Natually I’ll offer you a link on your net blog. Thanks for sharing.

  67. Please let me know if you’re looking for a article author for your
    blog. You have some really great posts and I feel I would be a good asset.
    If you ever want to take some of the load off, I’d absolutely love to write
    some content for your blog in exchange for a link back to mine.
    Please shoot me an e-mail if interested. Many thanks!

  68. Wow, wonderful blog layout! How long have you been blogging for?
    you made blogging look easy. The overall look of your website is magnificent,
    let alone the content!

  69. Alex9, this clue is your next piece of information. Please message the agency at your earliest convenience. No further information until next transmission. This is broadcast #8867. Do not delete.

  70. At this time it sounds like BlogEngine is the best blogging platform out there right now. (from what I’ve read) Is that what you’re using on your blog?|

  71. I found this website where you can play the latest online slots absolutely free.

Leave a Reply

Your email address will not be published.

X