When: Wednesday, April 19th: 2:30 pm to 3:30 pm EST 

Where: 440 First Street Northwest, Lobby-level Conference Room , Washington, DC 20001 


  1. Capitol Hill Update: Max Bronstein, Chief Advocacy and Science Policy Officer, EveryLife Foundation for Rare Diseases
  2. Newborn Screening in Florida: Vignesh Ganapathy, Associate Director of Advocacy and Government Relations, EveryLife Foundation for Rare Diseases


Agenda is OPEN. Please submit possible agenda items to vganapathy@everylifefoundation.org

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