Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2017 RARE Patient Impact Grant recipients. Launched at the 2015 RARE Tribute to Champions of Hope, this program directs financial support to deserving rare disease foundations and patient advocacy groups providing equipment, resources, and support to rare disease patients and their caregivers.

Now in its second year, the 2017 RARE Patient Grant Program offers two categories of funding, RARE Innovation and RARE Support. The 2017 grants were awarded to organizations making great progress on the path to finding treatments and cures for rare disease patients. 

 Collectively, rare disease affects 30 million Americans and 350 million people worldwide. The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the deadliest and most debilitating worldwide. 

“I’m overwhelmed with joy that the RARE Patient Impact Grant program continues to grow and distribute funds to such a worthy recipient base,” explains Nicole Boice, Founder and Chief Executive Officer of Global Genes. “Imagine how much closer we could be to finding cures and treatments if Global Genes could grant funds to all applicants – we want to do more.”

The RARE Patient Impact Grant program is funded by community donations, individual donors, funds from Global Genes fundraising events such as the Denim Dash, the Tribute to Champions of Hope, and more. Global Genes is committed to growing this signature program each year and making it easier for organizations to apply and receive the critical funding needed. To get involved in a local event, to donate, or to learn more please visit  https://globalgenes.org.

Global Genes would like to congratulate the fourteen grant awardees:

Global Genes will accept RARE Patient Impact Grant applications for 2018 between June 1, 2017 and September 18, 2017. To learn more about the 2017 RARE Patient Impact Grant awardees and their programs please visit https://globalgenes.org/raregrants.

About Global Genes® – Allies in Rare Disease
Global Genes is a leading global rare disease patient advocacy organization. The mission is to eliminate the challenges of rare disease, by providing patients with educational tools, building awareness, providing critical connections and support to people and resources, and through investment in technologies that will positively impact affected patients and families. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.

67 thoughts on “Global Genes Awards 14 Patient Organizations through RARE Patient Impact Grant Program”

  1. If you would like to increase your knowledge simply keep visiting this web site and be updated
    with the hottest news update posted here.

  2. g says:

    Very good blog you have here but I was curious about if you knew of
    any message boards that cover the same topics talked about in this article?
    I’d really like to be a part of group where I can get comments from other
    experienced individuals that share the same interest.
    If you have any suggestions, please let me know. Thanks!

  3. g says:

    Magnificent website. A lot of helpful information here. I’m sending
    it to some friends ans additionally sharing in delicious.
    And of course, thanks in your sweat!

  4. I was very pleased to find this page. I want to to thank you
    for ones time for this wonderful read!! I definitely savored every part of it and i also have you saved as a favorite to see new information in your site.

  5. Fine way of explaining, and good piece of writing to take facts
    regarding my presentation topic, which i am going to deliver in academy.

  6. This website was… how do I say it? Relevant!! Finally I’ve found something
    that helped me. Many thanks!

  7. I’m gone to inform my little brother, that he should also visit this web site on regular basis to get updated from most recent news.

  8. I all the time emailed this webpage post page to all my associates, because if like to read it next my contacts will too.

  9. Hiya! Quick question that’s totally off topic. Do you know how to make your site
    mobile friendly? My weblog looks weird when browsing from my iphone.
    I’m trying to find a theme or plugin that might be able to
    fix this problem. If you have any recommendations, please share.

    Many thanks!

  10. hey there and thank you for your info – I have definitely
    picked up anything new from right here. I did
    however expertise a few technical issues using this web site, as I experienced to reload the web site a lot of times previous to I
    could get it to load correctly. I had been wondering if your hosting
    is OK? Not that I’m complaining, but sluggish
    loading instances times will sometimes affect your
    placement in google and could damage your high-quality score if ads and marketing
    with Adwords. Well I am adding this RSS to my e-mail and could look out for a lot more of your respective fascinating content.

    Make sure you update this again soon.

  11. Cool blog! Is your theme custom made or did you download it
    from somewhere? A theme like yours with a few simple adjustements would really make my blog
    stand out. Please let me know where you got your design. Bless
    you

  12. My relatives every time say that I am wasting my time here at net, but I
    know I am getting familiarity every day by reading such nice posts.

  13. Its like you read my mind! You seem to know a lot about this, like you wrote the book in it or something.
    I think that you can do with a few pics to drive the message home a
    bit, but instead of that, this is fantastic blog.
    An excellent read. I’ll definitely be back.

  14. This information is worth everyone’s attention. When can I find
    out more?

  15. I have been exploring for a little for any high quality articles or weblog posts
    on this kind of space . Exploring in Yahoo I ultimately stumbled upon this
    site. Reading this information So i’m happy to express
    that I’ve an incredibly excellent uncanny feeling I came upon just what I needed.
    I such a lot indisputably will make sure to don?t put out of your
    mind this site and give it a glance on a relentless basis.

  16. This excellent website definitely has all the info I wanted concerning this
    subject and didn’t know who to ask.

  17. quest bars says:

    I simply couldn’t leave your website before suggesting that I extremely enjoyed the usual
    information an individual supply in your visitors?
    Is going to be again incessantly to investigate cross-check new posts

  18. My programmer is trying to persuade me to move to
    .net from PHP. I have always disliked the idea because of the expenses.
    But he’s tryiong none the less. I’ve been using Movable-type on various websites for about a year and am anxious about switching to another platform.
    I have heard very good things about blogengine.net. Is there a way I
    can import all my wordpress content into
    it? Any help would be greatly appreciated!

  19. I like the valuable information you provide in your articles.

    I’ll bookmark your weblog and check again here frequently.
    I’m quite certain I’ll learn many new stuff right here!
    Best of luck for the next!

  20. Hey there exceptional website! Does running a blog
    like this take a massive amount work? I have absolutely no understanding of programming however I was hoping to start my own blog soon. Anyhow, if you have
    any suggestions or techniques for new blog
    owners please share. I know this is off topic however I simply had to ask.

    Many thanks!

  21. Definitely believe that which you stated. Your favorite reason appeared to
    be on the net the simplest thing to be aware of. I say to you,
    I certainly get irked while people consider worries that they
    just do not know about. You managed to hit the nail upon the top and also defined
    out the whole thing without having side effect , people can take a
    signal. Will likely be back to get more. Thanks

  22. Nice blog here! Also your website loads up very fast!
    What host are you using? Can I get your affiliate link
    to your host? I wish my web site loaded up as quickly as yours lol

  23. Somebody essentially assist to make severely articles I might state.
    That is the very first time I frequented your web page and to this point?
    I amazed with the analysis you made to make this actual
    publish extraordinary. Excellent task!

  24. Appreciate this post. Will try it out.

  25. I like what you guys are up too. This sort of clever work and exposure!
    Keep up the fantastic works guys I’ve incorporated you
    guys to my personal blogroll.

  26. you’re in reality a excellent webmaster. The site loading speed is amazing.

    It seems that you’re doing any unique trick. In addition, The contents are masterpiece.
    you have performed a wonderful activity in this matter!

  27. Hi there it’s me, I am also visiting this web site daily, this site is actually
    pleasant and the visitors are genuinely sharing fastidious thoughts.

  28. You actually make it seem really easy with your presentation but I
    to find this topic to be really something which I
    feel I would never understand. It kind of feels too complicated and extremely wide for
    me. I’m taking a look ahead for your subsequent
    submit, I’ll try to get the cling of it!

  29. Keep this going please, great job!

  30. natalielise says:

    For newest news you have to go to see world
    wide web and on web I found this site as a best website for latest updates.
    plenty of fish natalielise

  31. I’m gone to convey my little brother, that he should also pay a quick visit this
    web site on regular basis to get updated from latest reports.

  32. You have made some decent points there. I looked on the net for more info about the issue and found most individuals will
    go along with your views on this web site.

  33. smore.com says:

    Thanks to my father who informed me on the topic of this weblog, this webpage is actually amazing.

    pof natalielise

  34. pof says:

    I was recommended this blog by way of my cousin. I am no longer sure whether or not this
    submit is written by means of him as no one else understand such certain approximately
    my difficulty. You’re incredible! Thanks!

  35. My partner and I stumbled over here different website and thought I may as well check things
    out. I like what I see so i am just following you. Look forward to checking out your
    web page for a second time.

  36. pof says:

    It’s amazing in favor of me to have a website, which is good designed for my know-how.
    thanks admin

  37. pof says:

    Hi excellent website! Does running a blog similar to this require a great deal
    of work? I’ve no understanding of coding however I was hoping to
    start my own blog in the near future. Anyway, should you have any suggestions or
    tips for new blog owners please share. I understand this is off topic
    but I just needed to ask. Kudos!

  38. Hello Dear, are you truly visiting this web site daily,
    if so afterward you will without doubt get fastidious knowledge.
    pof natalielise

  39. dating site says:

    Definitely consider that that you stated. Your
    favorite reason seemed to be at the net the simplest
    thing to remember of. I say to you, I definitely get annoyed while people think about
    concerns that they just don’t know about. You controlled to hit the nail upon the highest and also defined
    out the whole thing with no need side-effects , other folks can take a signal.
    Will probably be back to get more. Thanks

  40. Hi there! I’m at work surfing around your blog from my new iphone!
    Just wanted to say I love reading through your blog and look forward to all your
    posts! Keep up the excellent work! natalielise pof

  41. This website was… how do I say it? Relevant!! Finally I
    have found something that helped me. Kudos!

  42. Wonderful post however , I was wondering if you could write a litte more
    on this topic? I’d be very grateful if you could elaborate a
    little bit more. Many thanks!

  43. You really make it seem so easy with your presentation but I find this topic to be really something
    which I think I would never understand. It seems too complicated and extremely broad for
    me. I’m looking forward for your next post, I’ll try to get the hang
    of it!

  44. I’m not that much of a online reader to be honest but your blogs really nice, keep it up!

    I’ll go ahead and bookmark your website to come back in the
    future. All the best

  45. Thanks in support of sharing such a pleasant thought, piece of writing is fastidious,
    thats why i have read it entirely

  46. I’m not sure why but this web site is loading very
    slow for me. Is anyone else having this issue or is it a problem on my end?

    I’ll check back later on and see if the problem still exists.

  47. Fabulous, what a weblog it is! This weblog provides useful information to us,
    keep it up.

  48. For hottest news you have to go to see world wide web and on web I
    found this web site as a best website for latest updates.

  49. Hi, this weekend is fastidious in favor of me,
    for the reason that this moment i am reading this wonderful educational piece of writing
    here at my house.

  50. Just desire to say your article is as amazing. The clearness in your post is just spectacular and i can assume
    you’re an expert on this subject. Fine with your permission let me to
    grab your feed to keep up to date with forthcoming post.
    Thanks a million and please carry on the gratifying work.

  51. Hmm is anyone else having problems with the pictures on this
    blog loading? I’m trying to determine if its a problem on my end or if it’s the blog.
    Any responses would be greatly appreciated.

  52. I don’t know if it’s just me or if perhaps everybody else
    experiencing problems with your site. It appears as if some of the text in your
    content are running off the screen. Can somebody else please comment
    and let me know if this is happening to them as well? This could be
    a issue with my web browser because I’ve had this happen previously.

    Thanks

  53. This is my first time pay a quick visit at here and i am genuinely pleassant to read everthing at one place.

  54. Hello There. I found your blog using msn. This is an extremely well written article.
    I’ll be sure to bookmark it and come back to read more of your useful info.

    Thanks for the post. I’ll certainly comeback.

  55. If you desire to increase your familiarity simply keep
    visiting this site and be updated with the most recent information posted
    here.

  56. What’s up, its nice article about media print, we all be familiar with media
    is a fantastic source of data.

  57. Woah! I’m really enjoying the template/theme of this site.
    It’s simple, yet effective. A lot of times it’s tough to get that “perfect balance” between superb usability and appearance.
    I must say you’ve done a great job with this. Also, the blog loads very quick for me on Opera.
    Superb Blog!

  58. Hello there! I could have sworn I’ve been to this website before but after looking
    at a few of the posts I realized it’s new to me.
    Anyhow, I’m certainly pleased I stumbled upon it and I’ll be book-marking it and checking back frequently!

  59. I am really loving the theme/design of your website.

    Do you ever run into any browser compatibility issues?
    A handful of my blog audience have complained about my site not operating correctly in Explorer but looks great in Opera.
    Do you have any solutions to help fix this issue?

  60. great points altogether, you just gained a new reader.

    What might you recommend about your publish that you simply
    made some days ago? Any sure?

  61. Hello I am so delighted I found your weblog, I really
    found you by mistake, while I was searching on Askjeeve for
    something else, Anyways I am here now and would just like
    to say cheers for a marvelous post and a all round thrilling blog (I also love the theme/design), I don’t have time to read it all at the
    minute but I have saved it and also added in your RSS feeds, so when I have
    time I will be back to read a lot more, Please do keep up the great job.

  62. Excellent items from you, man. I have have in mind your stuff previous to and you
    are just too fantastic. I actually like what you’ve bought here, really like what you are stating and the
    way in which during which you assert it. You make it entertaining and you still
    care for to keep it smart. I can not wait to learn much more from you.
    That is really a tremendous site.

  63. Very good article. I’m going through many of these issues
    as well..

  64. Greetings from Los angeles! I’m bored to tears at work so I decided to check
    out your site on my iphone during lunch break. I really like
    the info you provide here and can’t wait to take a look
    when I get home. I’m amazed at how quick your blog loaded on my mobile ..
    I’m not even using WIFI, just 3G .. Anyways,
    superb blog!

  65. I really like your blog.. very nice colors & theme.
    Did you create this website yourself or did you hire
    someone to do it for you? Plz answer back as I’m looking to design my own blog and would like to know where
    u got this from. thanks

  66. I have been browsing online more than 2 hours today, yet
    I never found any interesting article like yours.
    It’s pretty worth enough for me. In my view, if all
    web owners and bloggers made good content as you did, the internet will be
    a lot more useful than ever before.

  67. Wow, marvelous blog layout! How long have you been blogging for?
    you make blogging look easy. The overall look of your web site is great,
    as well as the content!

Leave a Reply

Your email address will not be published.

X