SideEQ is a free, interactive platform which enables people living with cancer to track and manage their side effects so they can improve their quality of life and thrive despite cancer treatment. Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the treatment can often cause a host of side effects which can greatly impact quality of life and affect the patient’s compliance with their drug regimen. In fact, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of drug therapy interruption because side effects became too burdensome.
Infrequent, brief clinician visits and reluctance to speak to them openly about side effects make it difficult to address the problem, affecting the patient’s quality of life and ability to maintain a drug regimen. Additionally, patients have vast real-world experience with what works and what does not in side effect management but commonly only exchange information in “closed systems” like chat forums or groups.
In the age of daily cancer treatment regimens, patient participation in quality of life is more important than ever to wellness. SideEQ allows patients, caregivers and healthcare professionals to bring effective side effect management knowledge into the open. People living with cancer gain valuable insights into symptoms and cancer management, which they can then share with their physicians and other patients. By finding ways to mitigate the negative side effects intrinsic to many medications, patients can optimize their overall health while improving treatment outcomes.
Patients & Caregivers: Patients can input, track and share their side effects through a personalized dashboard as well as learn helpful tips and best practices from top healthcare professionals and other patients struggling with the same issues.
Healthcare Professionals: Medical experts from a wide variety of fields have the opportunity to share best practices, as well as learn valuable tips to apply to their own practice. Established in 2000, The Life Raft Group (LRG) is a non-profit organization The Life Raft Group which offers a suite of patient powered, scientific platforms that provide real-world insights and smart, actionable data to optimize cancer treatment and enhance the quality of life for patients.
The National Leiomyosarcoma Foundation and The Life Raft Group (GIST) announce a new collaboration to provide a valuable resource to the Leiomyosarcoma Patient-Family-Care Partner (caregiver) Community:
On May 5th, the National Leiomyosarcoma Foundation (NLMSF) and the Life Raft Group (LRG) came together to provide valuable assistance through the LIFE RAFT GROUP ‘s SideEQ tool – a free interactive platform that provides information on cancer treatment side effects and management.
SIdeEQ tracks side effects based on similarity of patients, their current LMS diagnosis, and quality of life indicators. In addition, vital information is provided by the patient and clinical experts on how to manage side effects.
The National Leiomyosarcoma Foundation is most grateful for this graciously extended collaborative opportunity. Such bridging of resource assistance for patients is the hallmark of the NLMSF’s mission focus, along with patient education and advocacy, as well as research support.
For more information about Side EQ and how it can help patients, please visit: https://www.mysideeq.
If you have any questions concerning this program please contact Annie Achee at (303) 783-0924 or annieachee@aol.