From RDLA and EveryLife Foundation
As you may already know, we are working to pass legislation called the OPEN ACT (Orphan Product Extensions Now, Accelerating Cures & Treatments) that could help double the number of affordable treatments available to rare disease patients.
As rare disease advocates, we need to make sure Congress gets our message loud and clear.
This bipartisan bill is supported by over 220 patient organizations and could bring hundreds of safe, effective, and affordable medicines to rare disease patients within the next several years by incentivizing drug makers to repurpose therapies for the treatment of life-threatening rare diseases. We need your help to make this bill a law.