From RDLA and EveryLife Foundation

As you may already know, we are working to pass legislation called the OPEN ACT (Orphan Product Extensions Now, Accelerating Cures & Treatments) that could help double the number of affordable treatments available to rare disease patients.

As rare disease advocates, we need to make sure Congress gets our message loud and clear. 

Please CLICK HERE to send an email to your legislators asking them to co-sponsor this lifesaving legislation.

This bipartisan bill is supported by over 220 patient organizations and could bring hundreds of safe, effective, and affordable medicines to rare disease patients within the next several years by incentivizing drug makers to repurpose therapies for the treatment of life-threatening rare diseases. We need your help to make this bill a law.

 

Leave a Reply

Your email address will not be published.

X