by Amanda Ames

Everyone in my family wears glasses. I remember being in first grade and struggling to see the chalkboard and being taken to go get glasses and I was so excited to be like everybody else! Growing up I never had any vision issues that couldn’t be corrected with eyeglasses. Just before my 18th birthday I started having a lot of headaches all the time. My glasses broke, so I went to the eye doctor thinking I’d be leaving with a new set of frames/lenses. Hours later I was still there as doctors kept checking my eyes. I was finally sent an hour away to an opthamologist who told me I might have a brain tumor. I was sent for an MRI scan of my brain and then I saw a neurologist for the very first time.

He told me that I had pseudotumor cerebri (now it’s called Idiopathic Intracranial Hypertension). He performed a spinal tap on me. My pressure was so high fluid shot out at him when he started. I heard him ask for an ‘extender’ and the nurses exclaim they’d never seen a LP where one was needed before. It wasn’t too painful, and I laid down in the back of the car all the way home. He later put me on Diamox and I had occasional hospitalizations due to pain where they would put me on morphine. At one point I was taken out of New York and put in a hospital in Burlington,Vermont where I had three more spinal taps and they increased my Diamox to 2,500mgs and added Topomax (I dont remember the dose and I am no longer on it, as the first night I took it, it caused sleep paralysis which was absolutely terrifying).

I’m now 32. I am one of the lucky ones who’s vision hasn’t been greatly compromised. I still need spinal taps and I remain on Diamox. I see a chiropractor which helps me lessen the pain. – I was referred by my neurologist and it’s important to make sure that it’s safe for YOU and your own doctors give you that permission first. I take about sixteen prescriptions including pain medication, sleep medication, anxiety medication, and anti-depressiants. I still have major headaches nearly all of the time and I struggle to find anyone offline who can actually relate to what that is like. It’s much worse then an occasional migraine and it is 24/7. It doesn’t go away like a migraine will. I miss the days where a headache could go away with two tylenol and a dark room. I guess my biggest piece of advice is to just to keep fighting. Take it day by day. Hour by hour. If you don’t like your doctors, find new ones!!! If you get treated poorly at an ER, report the people involved. I also want to say that my story so far has been much less worse then a lot of my friends who have suffered through surgeries and shunts as well.

21 thoughts on “So Much More Than a Migraine: Idiopathic Intracranial Hypertension”

  1. naturally like your website however you need to take a look
    at the spelling on several of your posts. Several of them are rife with spelling issues and
    I to find it very troublesome to inform the reality then again I’ll definitely come again again.

  2. g says:

    Spot on with this write-up, I honestly feel this amazing site needs much more attention. I’ll probably be returning to see more, thanks for
    the information!

  3. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is added
    I get four e-mails with the same comment. Is there any way you can remove people from
    that service? Appreciate it!

  4. I loved as much as you’ll receive carried out right here.
    The sketch is attractive, your authored subject matter stylish.

    nonetheless, you command get got an shakiness over that
    you wish be delivering the following. unwell unquestionably come more formerly again since exactly the same nearly a lot often inside case you
    shield this increase.

  5. Very good article! We will be linking to this great
    post on our site. Keep up the great writing.

  6. Fantastic goods from you, man. I’ve understand
    your stuff previous to and you’re just too great.
    I really like what you have acquired here, really
    like what you’re stating and the way in which you
    say it. You make it enjoyable and you still care for
    to keep it wise. I can not wait to read much more from you.

    This is actually a terrific site.

  7. steps to make A Dating Business

    6 week In Depth Online Video Course Is Aimed At enterprisers

    polk, Fla. oct. dating services Market and published in depth reports about it and its market segments since 1998.

    “There are lots of entrepreneurs that need to find a home based online business with a low start up cost. online dating service personals has become mainstream, Losing its past social judgment. No special licenses or degrees are needed to become a matchmaker or owner of a dating website, And the operational knowledge needed to be happy has not been available in one place, until now, based on Research Director, jon LaRosa.

    The iDate Course is a 6 week video course on starting an online dating service personals business. Ticonderoga Ventures has brought together the top experts in the dating business and created a series of seminars on the company plan. The course program is the following:

    Week 1: debut to the Dating Business

    Week 2: Dating software programming

    Week 3: Payments and approaches

    Week 4: client service / Offline Methods / Fraud

    Week 5: on the road Dating

    Week 6: climbing

    This video shows it all:The course begins girls in colombia November 6 and the Last Day to join up is November 5.

    The complete package includes:

    6 weeks of online video instruction (7 many hours.) On the dating website by 14 experts (critical)

    6 Weekly webinars for the Q (valuation: $300+)

    Dating Factory Dating Site services (valuation: $500+)

    Hub People Dating Site systems (value for money: $500+)

    A pass to the thinking about receiving 15 16, 2014 iDate expo in Las Vegas

    (The biggest dating industry conference of the season, appeal: $1,275)

    Dating Ad Network will review of your site for free.

    A 2012 dating industry market report from Marketdata corporation ($99 increased value)

    money back guarantee for 14 days.

    expenditure: $2,700 usd

    in mere 6 weeks, an individual might leapfrog themselves past others new to the dating business, Learning the nuts and bolts of operating a dating business, Avoiding the disadvantages, specify niches, And vastly ever-increasing their chance of success.

    “This is only the best (and only) Business video course getting started in the booming dating business, clearly. We are proud to be an affiliate and to offer this excellence course by Ticonderoga Ventures, in John LaRosa.

  8. Hi would you mind sharing which blog platform you’re using?
    I’m planning to start my own blog soon but I’m having a
    difficult time choosing between BlogEngine/Wordpress/B2evolution and Drupal.
    The reason I ask is because your design and style seems different then most blogs and I’m looking for something unique.

    P.S Sorry for being off-topic but I had to ask!

  9. If you desire to get a great deal from this piece of writing then you have to apply these techniques to your won blog.

  10. Hi to all, because I am genuinely eager of reading this blog’s post to be updated regularly.
    It consists of good information.

  11. It’s genuinely very difficult in this busy life to listen news on TV, so I simply
    use the web for that reason, and get the hottest information.

  12. Great items from you, man. I have keep in mind your stuff
    previous to and you are just too wonderful. I really
    like what you’ve acquired right here, certainly like what you’re stating and the best way
    through which you say it. You make it entertaining and you
    continue to care for to keep it smart. I can not wait to
    read far more from you. That is really a tremendous site.

  13. Hey I know this is off topic but I was wondering if you knew of any
    widgets I could add to my blog that automatically tweet my newest twitter updates.
    I’ve been looking for a plug-in like this for quite some time and was
    hoping maybe you would have some experience with something like this.
    Please let me know if you run into anything. I truly enjoy reading your blog and I look forward to
    your new updates.

  14. I need to to thank you for this very good read!!
    I certainly enjoyed every little bit of it. I have got
    you book marked to look at new stuff you post…

  15. Way cool! Some extremely valid points! I appreciate you writing this write-up plus the rest of the site is really good.

  16. Keep on writing, great job!

  17. Yes! Finally something about quest bars cheap.

  18. quest bars says:

    Nice post. I learn something totally new and challenging on sites I stumbleupon on a daily basis.

    It will always be helpful to read articles from other authors and
    practice something from other web sites.

  19. tinyurl.com says:

    Hmm is anyone else experiencing problems with the pictures on this
    blog loading? I’m trying to determine if its a problem on my end or if it’s the blog.

    Any suggestions would be greatly appreciated.

  20. Shaneped says:

    Japanese online dating sites australia

    Australia’s best 100% FREE Asian online dating site! Join the many white men seeking to meet Asian women online. all you should do is sign up today.

    Our primary aim is to help Asian girls dating online to develop genuine connections with likeminded individuals like you and discover true love. Loads of single Asian men and women want their match on the Internet’s best website for japanese dating sites australia Asians in Australia. Thanks to our amazing members and their testimonials, InterracialDatingCentral is now one of the leading interracial dating sites in the world. Fusion dating in this article, that has InterracialDatingCentral, Happiness is only a go on. Join the many white men seeking to meet Asian women online. Find a hot Asian date today with free enrollment. dig up Asian women that share your interests by chatting online through your new InterracialDatingCentral account. You can also join Asian girls chat groups that are all around on our dating site. Meet cute Asian singles in aussie Capital Territory with our FREE Australia Asian dating service. InterracialDatingCentral has helped scores of white people like you to find a long term relationship with single Asian girls.

    victoria Asian Dating Website, Melbourne Asian personals, Melbourne Asian Singles it’s not hard to sign up and even easier to start meeting people. Don’t imagine dating Asian women and finding ‘The One’ make it a reality!

    All your dreams of Asian women happens true when you open a InterracialDatingCentral account. it’s not hard to sign up and even easier to start meeting people. If you find attractive finding single Asian women, InterracialDatingCentral makes it simplallows you. Join the many white men seeking to meet Asian women online. Sign up on InterracialDatingCentral today and move on from loneliness! Our primary aim is to help Asian girls dating on the internet to develop genuine connections with likeminded individuals like you and discover true love. that includes InterracialDatingCentral, Happiness is only a sigh. Thanks to our amazing members and their successes, InterracialDatingCentral is now one of the main interracial dating sites in the world! every single single day, We are supporting people connect, Cultivate love and develop deep relationships on our online dating system. considering next? get hold of Asian women that share your interests by chatting online through your new InterracialDatingCentral account. all you need to do is sign up today. Don’t picture dating Asian women and finding ‘The One’ make it a reality! InterracialDatingCentral has helped scores of white people like you to find a long term relationship with single Asian girls. during the InterracialDnear theingCentral, The fun and flirtation is free of charge, So join our dating site and see just how easy and safe it is to date Asian women online. You can also join Asian girls chat groups that are around every corner on our dating site. Create your dating profile and start browsing compatible single Asian girls over night. Your Asian single woman is hanging around. With InterracialDatingCentral’s huge database of amazing modern singles, all you’ll wonder after joining will be why you didn’t join earlier! Fusion dating here,

    The aussie Japanese Couple I Met in Pyongyang

    Our primary aim is to help Asian girls dating online to develop genuine connections with likeminded individuals like you and discover girls from philippines true love. Loads of single Asian men and women need their match on the Internet’s best website for japanese dating sites australia Asians in Australia. Thanks to our amazing members and their accounts of success, InterracialDatingCentral is now one of the leading interracial dating sites in the world. Fusion dating what follows, on InterracialDatingCentral, Happiness is only a disappear. Join the many white men seeking to meet Asian women online. Find a hot Asian date today with free subscription. get hold of Asian women that share your interests by chatting online through your new InterracialDatingCentral account. You can also join Asian girls chat groups that are around every corner on our dating site. Meet cute Asian singles in foreign Capital Territory with our FREE Australia Asian dating service. InterracialDatingCentral has helped scores of white individuals like you to find a long term relationship with single Asian girls.

  21. Tao of Badass summaries

    Joshua Pellicer is a world renowned dating specialist for both male and female. After investing number of years just in study of expert dating suggestions and experiencing it by hand, Josh has provided the collection of real activities in it.

    in that time item, All the man would have the sufficient knowledge by which they can easily deal with the girl while in the beginning day of meeting for getting establish of the deeper relationship. Joshua Pellicer is a world renowned dating specialist for both male and female. After spending period of time just in study of expert dating advice and experiencing it by hand, Josh has actually supplied the collection of real life experiences in it.

    By this remedy, All the man would have the adequate knowledge through which they can quickly deal with the lady while initially day of meeting for getting establish of the deeper relationship. The provided suggestions which will become available in this book will assist a lot for each guy for eliminating old image as well as being plain easy lover boy by which no ordinary female can be attracted with.

    If you Trouble to get or getting a lady problem to approach the best lady, You can a lot more than Tao of Badass. Since it aid in giving the self-confidence for getting a lady in a normal bar or at any location, this is really good. The Tao of Badass is a skill. The few things in life are truly so particular but something is that to obtain bring in ladies which a knowing ability. The Tao of Badass aid offer, You need to be a safety boyfriend, Wooing playboy with the lady and you could possibly want to go for a date. besides it, you now have the plan to thrill the lady. The Tao of Badass be really nice. It is a nice product that help to obtain a Charmdate scam reviews female.

    this content deals with complete tao of badass review

    The Tao of Badass is split up into numerous modules. Here’s the article,

    a new.)Usual and horrible DATING MISTAKES perhaps you are making right now.

    n) The ALPHA MALE state of mind the best ways to approach with self-worth.

    t) How to quickly get HER TO way YOU.

    g) How to use BODY LANGUAGE in your favor.

    electronic) Tension free chats 1 on 1 and quick.

    farreneheit) IMPORTANT Tuning into her nonverbal communication.

    any time you cut your losses and move on, f).

    they would) a vey important key to successful dating.

    Along with self confidence, Getting females has a lot relating to movement. You are going to quickly find out ways to place yourself for optimum beauty. And this isn’t a laugh. with it, You can not just increase your self confidence, Body language but also gain the guts to be at ease any female and date them.

    The Tao of Badass is a digital training program made by Joshua Pellicer, Dating Train about the correct way to date and interact socially with a woman. Joshua Pellicer is a world renowned dating specialist for both female and male. After investing period of time only in study of professional dating insight and experiencing it by hand, Josh has actually offered the collection of real life experiences in it.

Leave a Reply

Your email address will not be published.

X