by Skyler Hrabe

I will never forget the feeling of utter helplessness, despair and disbelief as the realization dawned on me that my husband, Jason Hrabe, was going to have to prepare for the fight of his life.

Earlier this year our main focus was on starting the family we had always dreamed of and beginning the process of searching for a new home. Unfortunately, those dreams quickly became the last thing on our priority list as we learned that Jason’s health was compromised and we needed to start down the road to recovery immediately.
This all started about a month ago when Jason went into the doctor’s office to discuss some ongoing symptoms of headaches, tunnel vision, fatigue, and dizziness that had consistently presented themselves over the previous week. The doctor thought his symptoms may be attributed to neck tension, yet performed routine blood work to ensure there wasn’t any other underlying cause. Later that night, Jason’s physician called us and told us to head to the emergency room immediately because his hemoglobin dropped to 5.5. For those of you that don’t know, a normal man has a hemoglobin level of 12 – 14.5.

Jason stayed in the hospital for a little over a week where a multitude of tests were performed trying to pinpoint the root cause of his symptoms. The doctors continued to monitor Jason over the next few days, still concerned because his red blood cells were breaking down, but also because his hemoglobin, platelet, and white blood cell levels were low and continuing to decrease as well.
After a week in the hospital, a bone marrow biopsy, and numerous tests, the doctors eventually diagnosed Jason with a life threatening rare blood disease known as Paroxysmal Nocturnal Hemoglobinuria, or PNH. PNH is a RARE (seriously – one in a million), life-threatening blood disease. In addition to this, Jason is showing signs of bone marrow failure as well. This means he does not make enough red blood cells to carry oxygen, white blood cells to fight infection, or platelets to clot his blood –even the most minimal bleeding has the potential of not clotting. When his hemoglobin drops below a 7 he starts to become short of breath with the slightest activity and a common cold could take triple the amount of time to recover from. There are only two treatment options for those with this disease. The first is a recently developed drug called Soliris, which Forbes has deemed “the most expensive drug in the world ($450,000 annual cost) and the other is a bone marrow transplant. Jason will begin treatment with this drug once he gets the appropriate immunizations and then we will start our search for a bone marrow match.
One of the single most important things that Jason can do right now is to see a specialist who is familiar with the unique needs of a PNH patient and seek the best course of treatment. Upon meeting our ONH specialists at the Mayo Clinic, we learned that the only option for Jason long term will be a bone marrow transplant. Until that point, Jason will continue on the Soliris in hopes to control some of his red blood cell levels.
Due to the complexity of this condition and the lack of a full understanding of it, this is just the start of his life long journey to recovery, so please continue to keep us in your thoughts and prayers and check in with us along the way.
With the generous support of his family and friends, Jason looks forward to a day when he can report that he is PNH free and healthy again. Please share his story and help us raise awareness of this rare disease. We could also use as many thoughts and prayers that we can get right now, so please think of us throughout this difficult journey.

327 thoughts on “Tunnel Vision, Headaches Lead to Rare Diagnosis of Paroxysmal Nocturnal Hemoglobinuria”

  1. Pingback: Google
  2. Pingback: Google
  3. Pingback: male sex toys
  4. Pingback: penis pumps
  5. Pingback: erotic story
  6. Pingback: merter escort
  7. Pingback: US News
  8. Pingback: happyluke
  9. Pingback: male sex toys
  10. Pingback: best male stroker
  11. Pingback: escort bayanlar
  12. Pingback: esenyurt escort
  13. Pingback: mersin escort
  14. Pingback: sensuelle massager
  15. Pingback: Food Delivery
  16. Pingback: fun88
  17. Pingback: male masturbator
  18. Pingback: vibrator for women
  19. Pingback: silicone vibrator
  20. Pingback: visit here
  21. Pingback: MILF Porn
  22. Pingback: lotto vip
  23. Pingback: huay
  24. Pingback: male p spot toys
  25. Pingback: male stroker
  26. Pingback: thick dildo
  27. Pingback: Dank Vapes
  28. Pingback: site de streaming
  29. Pingback: Here
  30. Pingback: male stroker
  31. Pingback: w888
  32. Pingback: sex toy review
  33. Pingback: 1xbit esports
  34. Pingback: best in ottawa
  35. Pingback: 메이저사이트
  36. Pingback: labirint books
  37. Pingback: glorix
  38. Pingback: Macaw for sale
  39. Pingback: KETASET FOR SALE
  40. Pingback: dildo
  41. Pingback: apps for pc
  42. Pingback: mp3 dowload
  43. Pingback: STIIIZY Carts
  44. Pingback: IT Support Bristol
  45. Pingback: Livestock for sale
  46. Pingback: Masai tribe Kenya
  47. Pingback: best male sex toys
  48. Pingback: aromatherapy oils
  49. Pingback: sajtovi
  50. Pingback: lowes net
  51. Pingback: taurus gx4
  52. Pingback: sig p938 for sale
  53. Pingback: walther ccp m2 9mm
  54. Pingback: BUY stiiizy pods
  55. Pingback: magic mushrooms
  56. Pingback: magic mushrooms
  57. Pingback: buy juul online
  58. Pingback: helix gaming chair
  59. Pingback: 3080 ftw3 msrp
  60. Pingback: Vertise
  61. Pingback: stock market 101
  62. Pingback: buy adhd online uk
  63. Pingback: RissMiner
  64. Pingback: vertigo
  65. Pingback: bitcoin
  66. Pingback: nyoxx wa katta
  67. Pingback: Safari in Uganda
  68. Pingback: Uganda Safari Tour
  69. Pingback: savage grow
  70. Pingback: raw garden extract
  71. Pingback: brownells firearms
  72. Pingback: realistic stroker
  73. Pingback: babami sikin benim
  74. Pingback: masturbators
  75. Pingback: AYAHUASCA FOR SALE
  76. Pingback: Seiko 5
  77. Pingback: canada pharmacy
  78. Pingback: happyLuke
  79. Pingback: cucumber juul pods
  80. Pingback: Kolkata escorts
  81. Pingback: Buy Runtz Kush
  82. Pingback: CableFreeTV News
  83. Pingback:
  84. Pingback: The NMD News
  85. Pingback:
  86. Pingback: virtual card buy
  87. Pingback: mngo pods
  88. Pingback: vape juice
  89. Pingback: the cape
  90. Pingback: Methadone for sale
  91. Pingback: kimber handguns
  92. Pingback: THC Oil for Sale
  93. Pingback: Slots
  94. Pingback: henry lever 45/70
  95. Pingback: stiizy pod
  96. Pingback: sig m17
  97. Pingback: stiiizy flavors
  98. Pingback: takeout
  99. Pingback: hk45ct v3
  100. Pingback:
  101. Pingback: download mp3
  102. Pingback: buy lsd online
  103. Pingback: Perdomo Cigars
  104. Pingback: domain hosting buy
  105. Pingback: dildo
  106. Pingback: anal vibrators
  107. Pingback: divorce lawyers
  108. Pingback: Motorcycle Boots
  109. Pingback: HELEX PILLS
  110. Pingback: double sided dildo
  111. Pingback: sex toys for clit
  112. Pingback: keltec 9mm
  113. Pingback: vape carts
  114. Pingback: - do si dos strain
  115. Pingback: Virtual Visa Card
  116. Pingback: Glock 28
  117. Pingback: glock 43x
  118. Pingback: thelottovip
  119. Pingback: Colt Python
  120. Pingback: best male stroker
  121. Pingback: personal massager
  122. Pingback: savaschultz
  123. Pingback: palladium ore
  124. Pingback: Glock 35 for Sale
  125. Pingback: lingam massage
  126. Pingback: dudullu escort
  127. Pingback: butt plugs
  128. Pingback: glo carts
  129. Pingback: sletjes
  130. Pingback: full apps download
  131. Pingback: full apps download
  132. Pingback: buys
  133. Pingback: Herbal Incense
  134. Pingback: masturbation tips
  135. Pingback: eyelash boxes
  136. Pingback: glock 28
  137. Pingback: Ps5 for Sale
  138. Pingback: business in canada
  139. Pingback: Cake carts
  140. Pingback: car recycling
  141. Pingback: CZ P01 FOR SALE
  142. Pingback: ps 5 for sale
  143. Pingback: penis extension
  144. Pingback: Takeout Food
  145. Pingback: holandalucia
  146. Pingback: economics
  147. Pingback: economics
  148. Pingback: Google
  149. Pingback: scrap car pick up
  150. Pingback: escorts Delhi
  151. Pingback: thrusting vibrator
  152. Pingback: Latest News
  153. Pingback: pre ejaculation
  154. Pingback: Haupia strain
  155. Pingback: Watermelon haupia
  156. Pingback: Watermelon haupia
  157. Pingback: Bubble hash
  158. Pingback: Moroccan hash
  159. Pingback: Litto
  160. Pingback: Bubble hash