Rare Daily Staff

The rare disease patient advocacy organization Global Genes, publisher of Rare Daily, today announced executive changes as it marks its tenth anniversary and readies to implement a comprehensive strategic plan to guide its next phase of growth.

Founder and CEO Nicole Boice will step down from her leadership role to focus on scaling up development efforts to support continued growth of the organization. As part of this effort, Boice will spearhead several major initiatives the organization plans to roll out in the coming year. She will also continue to serve as a global rare disease ambassador and advocate for patient communities and will continue to serve on Global Genes Board of Directors.

“After a decade of growth, we’ve reached a point where I can focus my time and creative energies on making the biggest possible impact for patients and advocates globally,” said Boice. “I feel confident stepping away from a more traditional executive management role to do this knowing Angie and Tiffany now have the operational reins.”

Angie Rowe, who joined Global Genes in 2015 as chief operating officer, will serve as interim executive director. Rowe has more than 20 years of experience in executive management roles. Tiffany Leite, current chief program officer, will step in as chief operating officer. Tiffany joined the organization in 2017 and brings nearly 20 years of experience in nonprofit leadership and marketing.

“These changes are all about strengthening our organization’s capacity and positioning us for the growth ahead,” stated Angie. “Nicole is a visionary leader, and her energy and innovative thinking are a huge part of what’s propelled Global Genes forward. I’m looking forward to taking on these new leadership responsibilities, as is Tiffany.”
July 2, 2018
Photo: Angie Rowe, Nicole Boice, and Tiffany Leite of Global Genes

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