Exercise, socialize, and more at the 2019 RARE Patient Advocacy Summit

Namastay Rare

Advocate and Summit yoga instructor Elisabeth Parker and her son, Ezra.

Join rare disease advocate, Elisabeth Parker, Thursday and Friday morning to embrace your inner yogi and unroll your mat for an invigorating full-body flow. This class is built for all levels and the perfect way to kick off your mornings at the Summit. Thank you Novartis for helping us get our zen on!

Baseball at Petco Park

Join us at Petco Park as the San Diego Padres take on the Arizona Diamondbacks Saturday, September 21 at 5:40 p.m. With local craft beer and food and an ocean view, there’s no better way to see Downtown San Diego than with a trip to Petco Park. You can reserve tickets in advance or stop by the Global Genes booth in the PRA Exhibitor Pavilion anytime during exhibiting hours.

Sunnies in San Diego

Grab a pair of Blenders Eyewear sunglasses and enjoy the San Diego sunshine all week long. We’ll have a selection for you to try on and choose from. Thank you Biogen for helping keep our eyes protected!  

Wear that You Care

Be sure to stop by the Global Genes booth to see our new RARE House gear! New tees, sweatshirts and more! #CareAboutRare

That’s My Jam

Live band “That’s My Jam” will help us celebrate the conclusion of day one of the Summit by performing our favorite top 40 hits. 


Greetings from San Diego! Visit our postcard selfie spot to snap a picture with your fellow advocates. Be sure to share your photos with #2019GGSummit. Thank you Audentes for providing us with a little creative fun! 

Smile for the Camera

Need a new headshot for your RARE Portal profile? Stop by the Eversana booth in the exhibitor pavilion to have a free headshot taken. 

Make Your Mark

Help create artwork as special as the rare disease community we’re a part of. Visit the PRA Exhibit Pavilion and leave your thumbprint on this growing piece of art. Participants will be entered to win the canvas at the conclusion of the Summit. Thank you PRA Health Sciences for capturing something as unique as all of us!

Weekend Getaways? Concert Tickets?

This year, we’ll have a special gratitude wall in the exhibitor pavilion. Each patient and patient advocate will receive one entry. Additional tickets will be available during the Summit for purchase.

Crafting 4 a Cause

Crafting4aCause is raising awareness for rare disease by handcrafting hand-stamped custom jewelry. Be sure to stop by their booth in the PRA Exhibitor Pavilion. A portion of each #CareAboutRare bracelet will support Global Genes. Pre-orders are also being accepted. For pre-orders, please email deborah.vick@gmail.com.

Whether you attend our networking and social events or not share your Summit experience throughout the week with #2019GGSummit.