The 2019 RARE Patient Advocacy Summit is jam-packed with informative sessions, onsite events, networking and more. We’re breaking down all the details to get you through the week with our event tips & tricks. View the agenda.


Registration will take place at the Bayview Foyer. Please pick up your attendee badge, conference bag, and t-shirt there during the following hours:

Wednesday, September 18, Noon – 6:00 p.m.

Thursday, September 19, 7:30 a.m. – 4:00 p.m.

Friday, September 20, 7:30 a.m. – Noon

Dress Code

We suggest business casual/casual attire during the day. The forecast looks like a typical week in San Diego, sunny with an average high of 77 Fahrenheit. Believe it or not, it can get chilly in the evenings and in the hotel. We recommend having a sweater handy. If you’re attending the RARE Champion of Hope Celebration, cocktail attire is suggested.

Staying at the Sheraton San Diego Hotel & Marina?

Check-in time is 4:00 p.m. If you arrive before 4:00 p.m., you are welcome to check with the front desk as rooms will become available based on the hotel’s occupancy. Check out time is noon. If you need to make changes to your reservation, please let the hotel know as soon as possible to avoid any modification/cancellation fees. To make changes to your reservation, please call the hotel at (619) 291-2900. Have your confirmation number ready when calling.

When checking in, please have a credit card ready to give to the hotel to pay for your room and any incidentals. An incidental hold of approximately $200 will be placed on your card upon arrival. Be sure to confirm your check out date to avoid an early departure fee.

Hotel Airport Shuttle Schedule:

The airport shuttle runs between both towers (Marina Tower & Bay Tower) and the airport approximately every 20-25 minutes from 4:45 AM to midnight. Shuttles are marked with a Sheraton San Diego Hotel & Marina logo. Please feel free to contact the hotel at (619) 291-2900 for an estimated time of arrival for the shuttle. Shuttle service is complimentary.

Parking Rates:

Self-parking – $23 per day & Valet parking – $30 per day

If you are staying at the hotel, these discounted rates will already be applied to your reservation. If you are driving in for the event, please make sure to ask for a discounted parking ticket at registration.

Mobile App

Make sure to download our mobile app to stay updated on everything taking place at the Summit. You can also search for our app in your app store under the name “Global Genes Events.”

Don’t forget to check out all the activities happening throughout the week like yoga, free professional headshots, and more.  

More questions? Email our events team.