Dear Rare Disease Community,

Happy new year! I am so excited to enter this new decade filled with incredible opportunity. Science and technology continue to drive forward and meld with compassion and commitment to advance rare disease. As your Global Genes’ CEO and as a rare mom myself, I am confident and convinced that 2020 brings a true decade of HOPE and progress for us in the rare disease community.  

There is an African proverb that says, “If you want to go fast, go alone. If you want to go far, go together.” We have so much farther we all want and need to go to find treatments and cures for all rare diseases and I know we will succeed if we all work together.

The Global Genes team is kicking off this new decade with a promise to tirelessly collaborate and champion the needs of our rare families. We will continue to be a positive disruptor to push our rare space forward and improve the lives of everyone affected by rare disease.

We want to thank you all for being rare champions and advocates and encourage you to stay tuned to Global Genes in this new decade. We are growing and deepening our support and offerings, ensuring we are a strong resource for you and all of the one in 10 people in the world living with a rare disease and their families.

You can find us online and in-person at our many events including the RARE Drug Development Symposium, RARE Patient Advocacy Summit, RARE on the Road and more!

With all of us working together, I know we can harness the opportunities before us to affect positive change for rare disease in the next decade. Thank you all for being part of our rare family, let’s get to work!

With Hope,

Kimberly Haugstad

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