Author: Marissa BishopPatient or Advocate: Melissa MooreDisease Affiliation: CDKL5 deficiency disorder
Hello! My name is Marissa Bishop and I am on the board for the International Foundation for CDKL5 Research (IFCR). June is CDKL5 Awareness Month and I was hoping you would highlight a special story for me on your socials.
I recently wrote a blog post on our website with CDKL5 Mom, Melissa, sharing her story of walking every day during awareness month in honor of children whose lives have been cut short by CDKL5. You can see the blog post here: https://www.cdkl5.com/blog/cdkl5-mom-walks-to-remember/
Is this something you would share during CDKL5 Awareness Month to help bring a wider audience to this special story and raise awareness for CDKL5 and the IFCR? Thanks so much! I can be reached at [email protected]