You’re not alone.
When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare disease. Global Genes is committed to providing information, resources and connections to all communities affected by rare diseases.
Find Your ResourcesJoin us at Week in RARE!
We are delighted to combine the RARE Health Equity Forum and RARE Advocacy Summit as the Week of RARE, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This will be a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation.
September 18-21, 2023
Distinct types of Rare and Genetic Diseases
Million People Suffer From a Rare Disease Globally
Patients Diagnosed with a Rare Disease is a Child
Children with a Rare Disease Won’t Live to See Their 5th Birthday
Search the RARE List
For more resources, disease-specific information, and news, search our RARE List- an extensive list of rare diseases and rare conditions.
Search Our Full RARE List
Rare Concierge
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Learn and Find the Resources You needSearch our rare disease dictionary for information and resources on specific rare diseases.
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Read the BlogLearn more about how Rare X is ‘Putting Real World Rare Disease Data in Researcher’s Hands.’
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Contacting us to reach and engageResearchers and Research institutions interested in reaching out to patients for research purposes should contact us now to get started.