2016 LEMS Meetups

 

Global Genes
Invites Patients Living with LEMS
To Special Regional Meetups

Finding out that you have Lambert-Eaton Myasthenic Syndrome (LEMS) can be difficult. But you are not alone. In fact, sharing experiences with other patients affected by LEMS can help decrease isolation and provide valuable information and support. Meet other patients affected by LEMS to discuss the challenges of living with LEMS and new strategies for managing the disease. You’ll also meet with leading physicians to learn more about LEMS and how it effects the body.

Gain valuable information and support including:

  • Discussion of the disease with leading physicians treating LEMS
  • Tools for living with a chronic illness
  • Resources and support for patients
  • Connecting and maintaining relationships with other LEMS patients

Download LEMS information flyer

 

Upcoming 2016 Meetups

Location Date Discussion Topics Details
Jacksonville
Florida
June 4, 2016  LEMS Understanding and Q&A
Strategies for Living with LEMS
Community Support
Completed
Virtual / Online July 16, 2016 LEMS Understanding and Q&A
Strategies for Living with LEMS
Community Support
Completed
Philadelphia, PA January 20, 2017
6:00 p.m.-8:30 p.m.
LEMS Understanding and Q&A
Strategies for Living with LEMS
Community Support
Register

 

LEMS Meetup – Los Angeles, October 2015

“To have the opportunity of sharing my experience with LEMS and to find out that I’m not alone! All the information was wonderful and I learned very much about LEMS that I didn’t know. Thank you very much.”

For more information, please email Carrie Ostrea at carrieo@globalgenes.org 

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