Global Genes, in partnership with the Orphan Disease Center at the University of Pennsylvania School of Medicine, hosts the annual RARE Patient Advocacy Symposium designed to connect, educate and inspire rare advocates. The Symposium focuses on the drug development process and the role of rare disease advocates. This event takes place in conjunction with the University of Pennsylvania’s Million Dollar Bike Ride (MDBR), a cycling event that raises funds for rare disease research.
The 2019 RARE Drug Development Symposium will take place on June 7, 2019
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