We are a global community changing the way the world tackles rare disease. Our partners include nonprofit, government, academic, research, service and industry organizations that believe collaboration is the key to positive change.

Partner with us. Together, we can connect, empower and inspire the rare disease community.


The Global Genes RARE Foundation Alliance is a coalition of more than 500 rare disease organizations that believe in the power of collective impact and understand that together, we are more powerful.

Foundation Alliance membership provides networking opportunities and effective strategies, tools and resources to help build a foundation’s capacity. Foundation Alliance partners collaborate and exchange best practices to drive better outcomes for the rare disease community.

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The Global Genes RARE Corporate Alliance is a coalition of more than 75 rare disease industry stakeholders that are committed to collaboration between industry and patient communities to improve and expedite access to effective therapies for all rare patients.

Membership is open to pharmaceutical and biotech companies, industry and academia that want to support patient education, community building and improved access to approved rare disease treatments.

The organizations and the alliances Global Genes partners with have a patient focus, community-centered approach and like-minded vision for the future. 

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