Each year Global Genes puts together a two day Patient Advocacy Summit and our Tribute to Champions of Hope Gala. For the Global Genes team it means having the opportunity to unite a community and share resources to educate and empower patients. We were honored to have the chance to meet and interact with all of you. We’ve recieved an incredible response from those of you who attended and we would be honored to share your personal experience at the event with our readers here at The RARE Daily.
Interested in submitting your story ? Tell us about how you came to join the rare community and how the Summit and/or Gala and Day of Beauty impacted you!