Attended the 2014 Global Genes Summit and Gala? Share Your Story


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Each year Global Genes puts together a two day Patient Advocacy Summit and our Tribute to Champions of Hope Gala. For the Global Genes team it means having the opportunity to unite a community and share resources to educate and empower patients. We were honored to have the chance to meet and interact with all of you. We’ve recieved an incredible response from those of you who attended and we would be honored to share your personal experience at the event with our readers here at The RARE Daily.

Interested in submitting your story ? Tell us about how you came to join the rare community and how the Summit and/or Gala and Day of Beauty impacted you!

Share your story through our Guest Blogger link here.

Filed Under: Get Involved, Global Genes, Global Genes Events, Global Genes Press Releases

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Global Genes Comments

  1. The summit and gala were Amazing! The opportunity to meet other rare disease families, patients, organizations and physicians was a blessing. The summit offered so many resources, tools and inspiration. I left with more hope than I have ever felt on my 14 year journey with my disease. The Global Genes staff and volunteers are all very kind, caring and generous people. The best and most meaningful event I have ever attended in my life!

  2. The Global Genes Patient Advocacy Summit was the most beneficial conference I have attended in the 17 years of this journey to find a diagnosis for our daughter. The attendees is what made it for me. We were able to network with folks we had only read about, until now. We are planning our calendar around next year’s summit.

  3. What an awesome experience! Myself and two family members had the honor of attending the two day summit, the gala and the Day of Beauty. I cannot effectively put into words how thankful I am for this event and the wonderful staff at Global Genes. You were able to share extremely important information with all of us to help in our fights against rare diseases and you did it with great style and class. You thought of so many details and little ‘touches’ of love such as the Day of Beauty, the bonfire, the receptions, the gala….the list is endless. I appreciate you and your organization very much and thank you for such a wonderful experience.

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