
Upcoming Webinar: Using Successful Online Fundraising Strategies
July 28, 20145:35 am 2 CommentsDate: July 30, 2014 Time: 10:00 am PT / 1:00 pm ET Register here! Online fundraising has made it easier
Date: July 30, 2014 Time: 10:00 am PT / 1:00 pm ET Register here! Online fundraising has made it easier
The US Food and Drug Administration (FDA) is looking for a new leader for its Rare Diseases Program. In an
We all have our reasons. Sons, daughters, parents and friends—it’s a guarantee that anyone managing this sort of charity non-profit
The Progeria Research Foundation will be featured on The Katie Show Monday, July 28th. The segment will include a moving tribute to Sam
Join The Immune Deficiency Foundation for a Weekend Retreat for People Living with PI! This year’s event takes place in
Hearing the news that your child has a rare disease is life changing. It takes time to absorb the words
Transitioning to adulthood is hard enough. Doing it with a rare disease? That may require some guidance. So, Global Genes has put
One Saturday in April 2013, I woke up on the futon in my sister’s living room and felt like I
Our son, Noah, just turned six. He is a bright, happy boy who loves to swim, read books, and play
At 16 weeks gestation we were told Riley had severe heart defects. A month later we were sent to a
Matt Might and Cristina Casanova met in the spring of 2002, as twenty-year-old undergraduates at the Georgia Institute of Technology.
The APOLLO study Alnylam Pharmaceuticals, Inc is currently recruiting participants for the APOLLO study, an international clinical research study designed