Amy Grover

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“My Disease Stumped 72 Doctors” One Man’s Story of Decrum’s Disease
By Brian Sirk I have this rare disease, it’s called Dercum’s Disease. I was diagnosed with Decrum’s nine years ago. Before that I… Continue Reading
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Allergic to Being Cold? Mysterious Diagnosis Stumps Doctors Until Very Last Test
by Jennifer Cole It was a total of seven years of being misdiagnosed until recently this past June I took my daughter to the allergist.… Continue Reading
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Liam James, Our Superhero
By Tracey S. I’m married to my high school sweetheart. We’ve been together blissfully for over 10 years. In December 2012 we were ready… Continue Reading
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The Breath of Life: Thanks to Organ Donor, Scleroderma Patient Lives On
It was in late November 1998, I was a 24-year-old mother of two children who was noticing that my right index finger was turning a blue/… Continue Reading
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Infant Daughter’s Unusual Seizure Urgently Sends Parents to Children’s Hospital
Emma was born on March 20, 2015 via c-section (planned-a repeat) after a healthy and normal pregnancy. She seemed to be a perfectly healthy… Continue Reading
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The Long Road to a CVID Diagnosis in a Patient Who Refused to Give Up
It all started back in January of 2007. I was on a cruise ship and we were dock in St Thomas. I got sick on the second day of the cruise. I… Continue Reading
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“They Told Me To Go Home and Get My Affairs In Order,” Says Pulmonary Hypertension Patient
Submitted by Susie Alvarez On June 30, 1992, on my drive home from work, I had a crushing pain in my chest as though someone was sitting on… Continue Reading
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