Amy Grover

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Advocating for Aleigha
by Aleigha Rankin Writing an illness blog, running an advocacy page, and raising awareness in order to survive isn’t something I ever saw… Continue Reading
Fighting for Diagnostics: “I Begged For Them to Run the Test”
By Anita Crankshaw I am a 40-year-old female, and as a child I had problems. I always had headaches, difficult in all subjects at… Continue Reading
A Wife? A Mother? What Was Possible With a Diagnosis of Congenital Adrenal Hyperplasia?
I am a 37-year-old wife and mother of three handsome boys and I have a disease called Congenital Adrenal Hyperplasia (CAH) with salt… Continue Reading
A Challenge Met With Strength: Kaeden Doesn’t Let Congenital Eye Disease Take His Freedom
by Nadia Turki Kaeden is my son. He was born blind with a condition called Bilateral Peters Anomaly. He has had 39 surgical procedures on… Continue Reading
A Diagnosis of Primary Immune Deficiency Disease: What Took So Long?
by Betty Filippelli-Gordon I fell sick at age four, the cause of which, we assumed was a leak in a sewer pipe that traveled through my… Continue Reading
The PHight or Flight Project: How The Voice of One Pulmonary Hypertension Patient is Inspiring Others
by Serena Lawrence In October of 2013 I started to notice that I had some shortness of breath. At first, I just assumed it was seasonal… Continue Reading
Life In Stripes Podcast: a CVID Story
My son and I both have CVID. We have low immune systems and it makes it very easy for us to get infections. We get sick a lot. It has caused… Continue Reading
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