Amy Grover

“I Still Cry Every Now and Then, But With Tears of Gratitude”
Story by Sharon Anderson My path changed course in 2002. What was intended to be a surgery to remove a common uterine fibroid became the… Continue Reading
We Asked, “Is This Normal?” But It Wasn’t.
On March 8th, 2016, he was born stiff, easily startled and riddled with seizures. It was clear early on that Aiden’s life would be… Continue Reading
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A Cautionary Tale: What Happens When You Leave a Rare Disease Untreated
I was 7 years old and in second grade when my symptoms began. There was this chronic stabbing intestinal pain and vomiting, diarrhea, severe… Continue Reading
A Wife? A Mother? What Was Possible With a Diagnosis of Congenital Adrenal Hyperplasia?
I am a 37-year-old wife and mother of three handsome boys and I have a disease called Congenital Adrenal Hyperplasia (CAH) with salt… Continue Reading
A Challenge Met With Strength: Kaeden Doesn’t Let Congenital Eye Disease Take His Freedom
by Nadia Turki Kaeden is my son. He was born blind with a condition called Bilateral Peters Anomaly. He has had 39 surgical procedures on… Continue Reading
A Diagnosis of Primary Immune Deficiency Disease: What Took So Long?
by Betty Filippelli-Gordon I fell sick at age four, the cause of which, we assumed was a leak in a sewer pipe that traveled through my… Continue Reading
The PHight or Flight Project: How The Voice of One Pulmonary Hypertension Patient is Inspiring Others
by Serena Lawrence In October of 2013 I started to notice that I had some shortness of breath. At first, I just assumed it was seasonal… Continue Reading
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