Author Archives for Devon

Stay Social at the Summit

August 13, 20199:33 pm Published by Comments Off on Stay Social at the Summit

Exercise, socialize, and more at the 2019 RARE Patient Advocacy Summit Namastay Rare Join rare disease advocate, Elisabeth Parker, Thursday


A Lifetime of Casseroles

August 5, 20196:49 pm Published by Comments Off on A Lifetime of Casseroles

Being diagnosed with a rare disorder is like thinking you’re making a funfetti cake and getting stuck with a lifetime


Bigger than Baking

June 24, 201911:18 pm Published by Comments Off on Bigger than Baking

Everyday causes surface worthy of support and awareness. Occasionally with the right breaks on social media and online, these causes


Challenges Lead to Achievements

April 24, 20196:18 pm Published by Comments Off on Challenges Lead to Achievements

“I’m running a marathon.” It’s likely you’ve heard this from a friend or two before. It’s a bucket list item


A Rising Star in Rare

April 2, 20194:03 pm Published by Comments Off on A Rising Star in Rare

For most ordinary high school teenagers, the weekday morning begins with an alarm, followed by hitting the snooze button and