Daniel S. Levine

Daniel S. Levine is editor of Rare Daily. You can contact him by sending email to editor@globalgenes.org

Rare Leader: Katheryn Elibri Frame, Founder and President, CDKL5 Research Collaborative  
The Basics Name: Katheryn Elibri Frame Title: Founder and president Organization:  CDKL5 Research Collaborative Disease focus:  CDKL5… Continue Reading
Perlara Enters Collaboration with the University of Notre Dame Focused on Cori Disease and Pompe Disease
Rare Daily Staff Perlara said it has entered into a collaboration with the University of Notre Dame and the Warren Family Research Center… Continue Reading
Spotting Birds of a Feather
John Atkinson became a birder in fifth grader when his teacher told the students to put away their science books and follow her outside.… Continue Reading
Sigilon Therapeutics Names Rare Disease Veteran Rogerio Vivaldi as CEO
Rare Daily Staff Sigilon Therapeutics said that it has named Rogerio Vivaldi as its CEO to replace Paul Wotton, who has stepped back from… Continue Reading
Orchard Therapeutics Raises $150 Million to Advance Gene Therapy Pipeline
Rare Daily Staff Orchard Therapeutics said it completed an oversubscribed series C financing of $150 million to advance its gene therapy… Continue Reading
Mustang Bio Enters License Agreement with St. Jude for X-SCID Gene Therapy
Rare Daily Staff Mustang Bio said it entered into an exclusive worldwide license agreement with St. Jude Children’s Research Hospital for… Continue Reading
FDA Approves Amicus’ Fabry Therapy Galafold
Rare Daily Staff The U.S. Food and Drug Administration today approved Galafold, the first oral medication for the treatment of adults with… Continue Reading

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