Daniel S. Levine

Daniel S. Levine is editor of Rare Daily. You can contact him by sending email to editor@globalgenes.org

Rare Leader: Molly White, CEO of the Myotonic Dystrophy Foundation
The Basics Name: Molly White Title: CEO Organization: Myotonic Dystrophy Foundation Disease focus: Myotonic dystrophy is a genetic,… Continue Reading
Spark Prices Gene Therapy for Eye Disease at $850,000, Introduces Outcomes-Based Rebates
Rare Daily Staff Spark Therapeutics said it would charge $850,000 for Luxturna, its gene therapy to treat a certain form of an inherited eye… Continue Reading
Alexion and Hedge Fund Elliott Management Agree to Collaborate on Identifying a New Board Member
Rare Daily Staff Alexion Pharmaceuticals said today that its board of directors and shareholder Elliott Management have agreed to work… Continue Reading
Scholar Rock Announces $47 Million Series C Financing to Pipeline
Rare Daily Staff Scholar Rock, a biotechnology company focused on discovering and developing drugs that selectively modulate growth factor… Continue Reading
Sangamo and Pfizer to Collaborate on Development of Gene Therapy for ALS
Rare Daily Staff Sangamo Therapeutics and Pfizer said they will collaborate to develop a potential gene therapy using zinc finger protein… Continue Reading
Albireo Enters Royalty Monetization Agreement with HealthCare Royalty Partners for Constipation Drug in Japan
  Albireo Pharma said its subsidiary Elobix AB has entered into an agreement with HealthCare Royalty Partners to monetize its royalty… Continue Reading
Rare Leader: Margie Frazier, Executive Director of the Batten Disease Support & Research Association
The Basics Name: Margie Frazier Title: Executive director Organization: Batten Disease Support & Research Association Disease focus: Batten… Continue Reading