Emily Anne Tynan

RARECast: Understanding Rare Disease Caregiver Needs
Rare disease caregivers are good at advocating for their family members, for research, and for the needs of rare disease patients broadly.… Continue Reading
RARECast: Screening for Rare Disease
The Rare Disease Film Festival will debut in Boston, MA on October 2-3, 2017. The festival will feature a range of more than 30 films… Continue Reading
Doctor, CSO, and Father: Hunting for Answers for Fragile X Children
Dr. Michael Tranfaglia serves as Medical Director and Chief Scientific Officer of FRAXA, a nonprofit organization based in Newburyport,… Continue Reading