Emily Anne Tynan

Doctor, CSO, and Father: Hunting for Answers for Fragile X Children
Dr. Michael Tranfaglia serves as Medical Director and Chief Scientific Officer of FRAXA, a nonprofit organization based in Newburyport,… Continue Reading
Pardon Our Dust: RAREDaily Under Construction
Thank you for visiting! Please continue to submit your patient stories to be featured in the launch of the new site Fall 2017! We appreciate… Continue Reading
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Sep 14

RARE Patient Advocacy Summit

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Sep 14

RARE Partnering 2017

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RARE Champion of Hope Awards

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Tribute to Champions of Hope

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