Guest Blogger

Are you interested in submitting your story or speaking out on an issue in the rare disease community? Don’t be shy! Click here to submit your patient story--and click here to write a guest blog!

IPPF Research Grant Program Now Calling for Applicants
Organization: International Pemphigus & Pemphigoid Foundation Submitted by: Marc Yale The International Pemphigus and Pemphigoid Foundation… Continue Reading
Unraveling Rare: Appendix Cancer (Pseudomyxoma Peritonei)
Pseudomyxoma peritonei (PMP) is a rare cancer that usually starts in the appendix. Most often a polyp starts in the appendix in the inner… Continue Reading
My Life with Ehlers-Danlos: How Can You Be a Champion?
Welcome to 2017, friends! I’m grateful for new beginnings- even if it only means I have to remember to write a new number when I write the… Continue Reading
Dupuytren Disease: The Crippling Hand Condition You’ve Never Heard Of
By Dr. Charles Eaton Dupuytren disease is an inherited condition which can affect the hands. It causes scar tissue to form inside the palm,… Continue Reading
Caregiving Tips for the Holidays
Caregiving at any age is challenging at times.  Being responsible for the medical, emotional, and  financial care and well being of a… Continue Reading
The Letter I Would Write to Myself Before the Diagnosis
Dear Ellie of 2014, On June 18th, 2014, you will get your first Multiple Sclerosis diagnosis.  The type of MS you have will be changed a… Continue Reading
By Patients for Patients Scleroderma Experience Symposium
I say I’m on borrowed time because of how I was diagnosed and what my parents were told. Things started going bad when I was really young.… Continue Reading
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