If you’ve read my blog these last few weeks you know it’s been a crazy time in my world recently.
Author Archives for Ilana Jacqueline
On most days, Vascular Ehlers Danlos takes a back seat in my life, thanks to a magical creature continually by
The 7,000 ‘Bracelets for Hope’ campaign continues to raise awareness and give hope to families affected by rare disease! With
Thankful for Life Guest Blogger: Kevin Alexander, MA This morning on my way to work I was almost in a
By R.A.R.E. Team Guest Blogger: Vanessa Lemminger, M.A., IMF 68894 Marriage & Family Therapy Registered Intern Are you under stress?
Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Administration Into the Brains of Twins with Rare and Deadly Cholesterol DiseaseSeptember 24, 20109:41 pm Comments Off on Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Administration Into the Brains of Twins with Rare and Deadly Cholesterol Disease
Sugar Molecule Used in Common Food and Household Products Like Febreze® Fabric Refresher Called Hydroxypropyl Beta Cyclodextrin (HPßCD) Will be
Expedited review of disability applications from people with severely disabling conditions was announced this morning in a press release by