Nikki Berry

Global Genes® Elevates Operational Leaders, Refines Executive Role to Prepare for New Initiatives in Support of the Rare Disease Community
Media Contact: Tori Elder, The ACE Agency (702) 413-8625,   ALISO VIEJO, Calif. — July 2, 2018 — Global… Continue Reading
Global Genes® to Host 7th Annual Rare Patient Advocacy Summit October 3-4
ALISO VIEJO, Calif. – June 28, 2017 – More than 800 rare disease patients and advocates from around the globe will gather at Hotel… Continue Reading
RARECast: How One Rare Disease Group Leverages Relationships with Industry
The International Fibrodysplasia Ossificans Progressiva Association focuses on a rare genetic disorder, but it has had great success in… Continue Reading
How to Keep the Momentum Going in Orphan Drugs
The passage of the 21st Century Cures Act by the US House of Representatives means that there’s potential for faster drug development in… Continue Reading
Can This Outsourcing Model Save Health Care?
By Louis Garguilo, Executive Editor, Outsourced Pharma Follow Me On Twitter @Louis_Garguilo   A company has been formed to push aside the… Continue Reading
Project Alive Campaign Moves Hearts (and Wallets) of Moms…Dads…and Celebrities
Case Hogan brought home a picture from his kindergarten teacher that said he wanted to be a fireman. Most parents would “ooh and aah.”… Continue Reading
Sarepta Planning to Dominate Duchennes in Rare Disease Race With BioMarin
By Damian Garde   Sarepta ($SRPT), jockeying with rival BioMarin ($BMRN) to commercialize a treatment for Duchenne muscular dystrophy, is… Continue Reading

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