7.2.2017
SOURCE Jen Rubino knows how it feels to be sick and in the hospital at a young age. The 22-year-old was diagnosed with a rare childhood bone… Continue Reading
6.27.2017
by Liam Croy A Perth family devastated by a rare genetic disorder has been thrown a lifeline by a world-leading research program in Italy.… Continue Reading
6.27.2017
by Skyler Hrabe I will never forget the feeling of utter helplessness, despair and disbelief as the realization dawned on me that my… Continue Reading
6.26.2017
Five years ago, 12-year-old Alex Chiabai was one of the first boy in Canada to begin taking drisapersen, a promising drug that provided a… Continue Reading
6.20.2017
Thanks to 9News.com.au for this piece. A Sydney man who was paralysed by a rare autoimmune disease while holidaying in New Zealand last… Continue Reading
6.19.2017
Joel Strickland is a rare boy, not only because he is a diminutive, 12-year-old, guitar-playing, cowboy-hat-wearing, dirt-bike-riding… Continue Reading
6.19.2017
A widow has become the first Briton ever to be diagnosed with an ultra-rare disease after she regurgitated seven pints of vomit that looked… Continue Reading
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