Author Archives for

Tala Beth Warrior Princess

August 12, 202210:20 am Published by Comments Off on Tala Beth Warrior Princess

Author: Christine McCollum DavisPatient or Advocate: Tala McCollum DavisDisease Affiliation: Walker-Warburg Syndrome I have two daughters, Kai (5) and Tala


My Journey: Fighting The Big Fight Against My Rare Diseases

June 27, 20223:00 am Published by Comments Off on My Journey: Fighting The Big Fight Against My Rare Diseases

Author: Saida Luvenia MahoneyPatient or Advocate: Saida MahoneyDisease Affiliation: Partial Trisomy 8q Hello my name is saida mahoney I am