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Mackenzie Abramson provides a recap of Rare Disease Day and Rare Disease Week activities in Washington D.C. […]
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Kids with rare diseases experience depression and anxiety at 2-3 times a higher rate than their peers. […]
Read moreFinding Support: A Compilation of Emotional and Mental Health Resources in the United States
There are a number of mental health resources available for rare disease patients, families and caregivers, but […]
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Many resources are available for mental health care, but it is important to carefully research them, access […]
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Having a chronic and rare disease is a challenging experience, and especially difficult for children and adolescents, […]
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