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My daughter Juno was diagnosed with a very rare, severe neurodevelopmental condition called STXBP1-related disorder six years […]
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National Caregiver Day in the United States falls on the third Friday of February every year, on […]
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Patient or Advocate: Brittany Anderson Disease Affiliation: Fibrous Dysplasia, McCune Albright Syndrome, Panhypopituitarism, Adrenal Insufficiency, Trigeminal Neuralgia, […]
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Patient or Advocate: Nick Irwin Disease Affiliation: Porencephaly Hi. My name is Nick. I’m 6 foot 3 […]
Read moreEnd of AmazonSmile program impacts non-profits
Last month, Amazon announced it is sunsetting its AmazonSmile program on Monday, February 20, 2023. The program […]
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Patient or Advocate: Tymiak Hawkins Disease Affiliation: Cavernous Malformation, Wallenberg Syndrome, Horner Syndrome My name is Tymiak […]
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