World Rare Disease Day 2015 Planning Webinar 12/9/15

November 11, 2014


World Rare Disease Day 2015 Planning Webinar:  Ideas and Suggestions to Host Your Own World Rare Disease Day Event
December 9, 2014 – 11:00 am PT (60 minutes)

Register today!

With World Rare Disease Day right around the corner (February 28th. 2015), this session will explore event ideas to create awareness for your specific rare disease as well as the entire rare disease community as a whole.

Topics include:

  • Hosting your own Rare Disease Day events
    • Schools
    • Businesses
    • General Community
  • Reaching out to the media to share your story
  • Advocating in Washington D.C. during Rare Disease Week
    … and more!

Moderator: Carrie Ostrea, Advocacy Director

World Rare Disease Day

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