“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga

November 18, 2013

With graphics unlike you’ve ever seen before, the Wall Street Journal has created a multi-chapter journey for readers to explore the world of rare disease and treatment through the Hempel family’s journey.

The piece, which includes incredible photography, video, interviews, and a complete history of the life of Addi and Cassi Hempel–shows two beautiful, young girls with a mysterious and progressive disease called Niemann-Pick Type C.

Championed by their mother, Chris, and father Hugh, the two former silicone valley entrepreneurs embarked on a massive undertaking–to advocate for, find, produce and fight for a cure for their little girls. Their determination takes them through boardrooms and courtrooms, laboratories with giant mechanical robots, and hospital stays that seem never-ending.

“A Desperate Fight to Save Kids and Change Science,” is a must-read–not just for those involved in the rare disease community, but for any parents who have had to fight for the well-being of their child through any illness.

Read the whole story by clicking the image below.


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